Introduction
Thank you for visiting my little island on the world-wide web.
Most people call me Rachel, Nurse or Mrs Wright but three special boys get to call me mum. In 2005, my eldest was born with a bump. He didn’t breathe on delivery and was diagnosed ten weeks later with having severe brain damage.
From then, my husband and I hurtled down an unmarked road of loving a child with complex disabilities and life-limiting epilepsy. Today I use my memories, experiences and skills to support families like mine and inform the practitioners who care for us.
Blog
Find out more about my life being a mum to three lovely boys, one of whom has severe and complex disabilities.
Training
As a nurse and parent, I am well placed to develop and deliver training for practitioners who care for families of children with complex disabilities.
Speaking Events
I’ve always been a talker and strongly believe in the power of story-telling. Being real and honest about the joys and challenges for parenting a child with complex disabilities can have a profound impact.
Book
My book, The Skies I’m Under, is a raw and honest account of becoming the parent of a child with complex disabilities.
Writing
I discovered a love for writing when I realised it was just like talking but without the interruptions.
Calendar
Find out when my latest speaking and training events are coming up.
Latest from the Blog
The pain of sharing someone else’s joy.
A woman dreamed of having her own garden. She pictured herself planting [...]
The moment everything changes…
A defining moment can happen anywhere, for us it came at ten weeks [...]
Why my son won’t be accepting his 100% attendance award
Four reasons my son won't accept his 100% Attendance Award. No. 2 son [...]
Cast your vote, but it won’t change tomorrow
#vote2017 The snap General election, geared at making our nation more stable and stronger [...]
Testimonials
“Rachel produces fantastic resources, all fully referenced and evidence based yet accessible and powerful”
“Rachel’s presentation on our End of Life training day gave a true, open and honest insight into the journey of a parent of a child with a life limiting condition.”
“Rachel’s dedication and enthusiasm for her work is infectious. She speaks from the heart and is a true advocate for families and their children. It is a pleasure to work with her”