Introduction
Thank you for visiting my little island on the world-wide web.
Most people call me Rachel, Nurse or Mrs Wright but three special boys get to call me mum. In 2005, my eldest was born with a bump. He didn’t breathe on delivery and was diagnosed ten weeks later with having severe brain damage.
From then, my husband and I hurtled down an unmarked road of loving a child with complex disabilities and life-limiting epilepsy. Today I use my memories, experiences and skills to support families like mine and inform the practitioners who care for us.
Blog
Find out more about my life being a mum to three lovely boys, one of whom has severe and complex disabilities.
Training
As a nurse and parent, I am well placed to develop and deliver training for practitioners who care for families of children with complex disabilities.
Speaking Events
I’ve always been a talker and strongly believe in the power of story-telling. Being real and honest about the joys and challenges for parenting a child with complex disabilities can have a profound impact.
Book
My book, The Skies I’m Under, is a raw and honest account of becoming the parent of a child with complex disabilities.
Writing
I discovered a love for writing when I realised it was just like talking but without the interruptions.
Calendar
Find out when my latest speaking and training events are coming up.
Latest from the Blog
“Please, Sir, I want some more.”
I was lying in bed this week and the image of Oliver floated into [...]
The pain of sharing someone else’s joy.
A woman dreamed of having her own garden. She pictured herself planting [...]
The moment everything changes…
A defining moment can happen anywhere, for us it came at ten weeks [...]
Why my son won’t be accepting his 100% attendance award
Four reasons my son won't accept his 100% Attendance Award. No. 2 son [...]
Testimonials
“Rachel produces fantastic resources, all fully referenced and evidence based yet accessible and powerful”
“Rachel’s presentation on our End of Life training day gave a true, open and honest insight into the journey of a parent of a child with a life limiting condition.”
“Rachel’s dedication and enthusiasm for her work is infectious. She speaks from the heart and is a true advocate for families and their children. It is a pleasure to work with her”