Becoming the parent of a child with disabilities can be daunting and overwhelming, rewarding and incredible.
In 2005, my eldest son was born with a bump. He didn’t breathe on delivery and was diagnosed ten weeks later with having severe brain damage. From then, my husband and I hurtled down an unmarked road of loving a child with complex disabilities and life-limiting epilepsy. Today I use my memories, experiences and skills to support families like mine and inform the practitioners who care for us.
My faith shapes my world view, how I live and how I love. I now believe in the blessing of brokenness.
As a nurse and parent, I am well placed to develop and deliver training for practitioners who care for families of children with complex disabilities.
I’ve always been a talker and strongly believe in the power of story-telling. Being real and honest about the joys and challenges for parenting a child with complex disabilities can have a profound impact.
My book, The Skies I’m Under, is a raw and honest account of becoming the parent of a child with complex disabilities.
I discovered a love for writing when I realised it was just like talking but without the interruptions.
Find out when my latest speaking and training events are coming up.
Latest from the Blog
“Rachel produces fantastic resources, all fully referenced and evidence based yet accessible and powerful”
“Best session I have ever encountered at Uni”
“So relevant and helpful. Probably the most insightful training I have been on.”