
Introduction
Becoming the parent of a child with disabilities can be daunting and overwhelming, rewarding and incredible.
In 2005, my eldest son was born with a bump. He didn’t breathe on delivery and was diagnosed ten weeks later with having severe brain damage. From then, my husband and I hurtled down an unmarked road of loving a child with complex disabilities and life-limiting epilepsy. Today I use my memories, experiences and skills to support families like mine and inform the practitioners who care for us.
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