Thank you for visiting my little island on the world-wide web.
Most people call me Rachel, Nurse or Mrs Wright but three special boys get to call me mum. In 2005, my eldest was born with a bump. He didn’t breathe on delivery and was diagnosed ten weeks later with having severe brain damage.
From then, my husband and I hurtled down an unmarked road of loving a child with complex disabilities and life-limiting epilepsy. Today I use my memories, experiences and skills to support families like mine and inform the practitioners who care for us.
Find out more about my life being a mum to three lovely boys, one of whom has severe and complex disabilities.
As a nurse and parent, I am well placed to develop and deliver training for practitioners who care for families of children with complex disabilities.
I’ve always been a talker and strongly believe in the power of story-telling. Being real and honest about the joys and challenges for parenting a child with complex disabilities can have a profound impact.
My book, The Skies I’m Under, is a raw and honest account of becoming the parent of a child with complex disabilities.
I discovered a love for writing when I realised it was just like talking but without the interruptions.
Find out when my latest speaking and training events are coming up.
Latest from the Blog
“It’s just so hard, it's constant, not just physically but emotionally and mentally.” [...]
“Rachel produces fantastic resources, all fully referenced and evidence based yet accessible and powerful”
“Rachel’s presentation on our End of Life training day gave a true, open and honest insight into the journey of a parent of a child with a life limiting condition.”
“Rachel’s dedication and enthusiasm for her work is infectious. She speaks from the heart and is a true advocate for families and their children. It is a pleasure to work with her”