“Grown-ups write letters to the council all the time but nine-year-old boys don’t,” I assured him. “We all need to say what we think is right, no matter how old we are.” Read more →
An open letter to the Local Council that said NO…
It is a common phenomenon for parents of children with complex needs to hear ‘No’ from professionals and councils. A universal experience is our need to fight for our children. Read more →
Me Before You – Speaking out
‘Me before you’ is being challenged by the disability community. Parents of disabled children have been called to take a stand. So, here I am speaking out about how ‘Me before you’ affected me. Read more →
Selfies – everyday moment, forever memory
There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe. Read more →
Children’s Hospice Week – ‘Normal’ family life
Everyone’s normal is different. Nearly 50,000 children and their family’s, live with a life-shortening condition. There are many hidden stories, as people quietly live out their tough and precious ‘normal’. Read more →
Children’s Hospice Week Starts 23rd May 2016
I know today is nearly over but it’s the first day of Children’s Hospice week so I wanted to say something. Being allowed to stay at a Children’s Hospice, is one of those things no-one wants to be eligible for. There are lots of these ‘clubs’, small groups of people that deep down we don’t want to be like or don’t want… Read more →