Monthly Archives: May 2017

5 Reasons to Turn Up the Volume

By | 2017-06-15T09:32:35+00:00 May 24th, 2017|Categories: #upthevolume, Children's Hospice Week, HRH Duchess Cambridge, Mother of child with special needs, Together for Short Lives, Uncategorized|

Events this week has reminded us all how life can change in a minute. The tragedy in Manchester has shattered the hearts and lives of so many families. For 49,000 families in the UK, we know the reality of a life defining moment. Our children have a life-limiting diagnosis and so we have experienced first hand [...]

A world of conflicted truth

By | 2017-06-15T12:07:08+00:00 May 17th, 2017|Categories: disability, exhaustion, expectations, Mother of child with special needs, mum of child with disability, Tearful, Truth|

The truth is my son is wonderful. It’s true our lives are good. It’s true I am lucky and blessed in so many ways. It is true he is precious and unique, loved and created. It’s true he fills our home with love and has taught us all how to be better humans. It is true that [...]