rachelw

Home/Rachel Wright

About Rachel Wright

Qualified Nurse, Writer, Trainer, Public Speaker and unqualified parent of three. My days consist of Lego, laundry and loving three boys, one of whom has complex and life-limiting disabilities.

A world of conflicted truth

By | 2017-05-17T10:36:54+00:00 May 17th, 2017|Categories: disability, exhaustion, expectations, Mother of child with special needs, mum of child with disability, Tearful, Truth|

The truth is my son is wonderful. It’s true our lives are good. It’s true I am lucky and blessed in so many ways. It is true he is precious and unique, loved and created. It’s true he fills our home with love and has taught us all how to be better humans. It is true that [...]

Choice: Real or Myth (Part 2)

By | 2017-05-15T15:35:10+00:00 April 26th, 2017|Categories: Uncategorized|

A couple of years ago, a student midwife tried to persuade me that choice in pregnancy meant being able to have a home birth. In my first blog Choice: Real or Myth, I reflected on how choice is a privilege afforded to women in the UK. Something that isn’t on offer for many others around the world. [...]

Choice: Real or Myth (Part 1)

By | 2017-05-08T19:56:22+00:00 April 20th, 2017|Categories: birth, choice, expectations, pregnancy, risk|

Two years ago, I was sitting on my hospital bed alone, eight months pregnant. Unaware I would need an emergency c-section 3 hours later, I started thinking about choice and wrote this: 'It's the night before my third son will be born. Nearly four weeks before his due date and three weeks ahead of schedule. Once [...]

Unanswered questions and different answers

By | 2017-05-08T20:04:42+00:00 April 10th, 2017|Categories: Uncategorized|

When a child is diagnosed with a complex disability, a tidal wave of unanswered questions sweeps through life. As though, one minute you live in a town that you recognise, one you've lived in your whole life. It is a town with familiar faces, understandable street names and identifiable buildings. Then the next minute you've been teleported to a place where the [...]

Is it too much to ask, to not have to fight?

By | 2017-05-08T20:03:04+00:00 February 23rd, 2017|Categories: Changing places, disability, fighting, Mother of child with special needs, mum of child with disability, Uncategorized|

**WARNING IMAGINATION REQUIRED** Imagine me in a Miss World competition. Obviously to do this, you'd have to believe I've abandoned any feminist ideals, grown a foot in height, enhanced my breasts and shrunk my waist. But, bear with me... Should I ever be a contestant on Miss World and the MC asks me what would be my one wish, it probably wouldn't be 'World [...]

I’m not a Supermum…and that’s ok.

By | 2017-05-08T20:18:36+00:00 February 19th, 2017|Categories: disability, exhaustion, expectations, family, Mother of child with special needs, mum of child with disability, Simple Stuff Works|

For about three seconds in 2005 (the year I became a mum) I thought I could be a SuperMum. It didn’t last long. Unfortunately, I spent a few years trying to pretend to be a Supermum. Every morning I donned my Lycra suit and tried to trick everyone into thinking I’m Superman. Having a son with severe disabilities meant [...]

Living on the Edge: My life as a parent

By | 2017-05-17T10:14:24+00:00 February 8th, 2017|Categories: acceptance, cerebral palsy, complications, disability, exhaustion, family, living on the edge, Mother of child with special needs, mum of child with disability, Uncategorized|

Is it just me? Or does anyone else feel like they are desperately trying to keep their house in order whilst stopping themselves from falling over the edge? I’ve always enjoyed living life a little on the edge. I love travelling and feeling like the foreigner. I’ve even been known to eat something that is a day [...]

Comments Off on Living on the Edge: My life as a parent

5 little things that make a Big Difference

By | 2017-05-17T10:14:05+00:00 February 8th, 2017|Categories: cerebral palsy, Don't call me Mum, mum of child with disability, parenting, Parents as partners, Uncategorized|

Little things can make a difference. I’ve always thought this was right but recently it’s truth has seeped a little deeper. When I worked as a  nurse in A&E, I knew that even in the middle of emergency procedures, how I treated the patient and family would be remembered. As a parent standing over my fitting son while the [...]

Comments Off on 5 little things that make a Big Difference

12 Days of Christmas (parody for complex families )

By | 2017-05-08T20:24:53+00:00 December 9th, 2016|Categories: 12 days of Christmas, Advantages, Christmas, mum of child with disability, special needs, Thank you|

Shakin Stevens and Slade are unashamedly blasting out from music systems around the country. The usual suspects have decked their homes with enough lights to be seen from space.  'Miracle of 34th Street' and 'It's a wonderful life' are scheduled several times over the next couple of weeks. Simple Stuff works have made a goat looking 'Sian [...]

Don’t call me Mum Campaign

By | 2017-05-15T15:38:23+00:00 November 7th, 2016|Categories: Don't call me Mum, Parents as partners|

Only a few people in this world call me Mum, and to everyone else I ask, "Please don't call me mum." I have a few pet hates. They include; Hardened weetabix that needs a chisel to remove Finding my laundry mottled with disintegrated tissue Someone parking so close to my wheelchair adapted car that I can’t [...]