Blog 2017-05-24T09:23:48+00:00

I’m so not inspirational, but I know people who are.

In our family, we have sorry rules. Sounds up tight, I know, but wanted 'sorry' to be meaningful and helpful, not flippant and reactive. Sorry was being said too easily without thought and was quickly becoming meaningless. The sorry rules are simple and I stole them from Cuppacocoa parenting blog about A better way to say sorry. They involve four [...]

By | March 23rd, 2018|Categories: Uncategorized|0 Comments

7 Ways to get the Best out of your Professional

Getting the best out of your professional is the title of a workshop I developed for parents like me who have children with additional needs. Some people, particularly practitioners, may wince at the title. Yet families like mine are often referred to as clients, case-load or service-users. Seeing the table turned shines an interesting light on how impersonal and [...]

By | March 13th, 2018|Categories: Uncategorized|0 Comments

“Never feed your son again.”

   “Our recommendation is that you never feed your son orally again.” These words were spoken to me as I sat wedged along a corridor at Great Ormond Street Hospital. No box of tissues. No comfortable sofa. Less than ten words were used to inform me that my son would never eat another birthday cake, enjoy a sunny-day ice-cream or [...]

By | February 9th, 2018|Categories: Uncategorized|0 Comments

Can I really make a difference?

Some lovely people (probably my parents) have nominated me for the category of ‘Making a Difference’ at the BAPS blogging awards presented by Bringing us Together. It got me thinking, how do I want to make a difference? Firstly, the difference starts at home. There is no point in me speaking and writing to inform others about what life [...]

By | February 2nd, 2018|Categories: Uncategorized|0 Comments

Mind the Gap: Parliament DCP manifesto launch

On 29th November I was privileged to speak on behalf of parents at the Disabled Children's Partnership manifesto launch at Parliament. It was fantastic to see so many charities and influential people recognising the struggles families like mine face daily. It was refreshing to feel seen and heard, that people are acknowledging the #SecretLivesofUs and wanting to see change.   [...]

By | December 15th, 2017|Categories: Uncategorized|1 Comment

Success and how to measure it.

The lights were on, the stage packed and hundreds of people sat in anticipation. For months, volunteers, family and friends had supported performers to practice every week. Last night, S was on stage with an amazing group of people for Music is Magic at the London Palladium. It is the second time he has had this incredible opportunity. I [...]

By | October 16th, 2017|Categories: Uncategorized|0 Comments