Blog 2017-05-24T09:23:48+00:00

The pain of sharing someone else’s joy.

A woman dreamed of having her own garden. She pictured herself planting and tending flowers of all shapes and sizes. She hoped her borders would brim with colour and fragrance, laced with creepers displaying exotic blooms and a winding path through blossoms humming with wildlife. When she moved in to her forever home, it was nothing she had [...]

By | August 17th, 2017|Categories: garden, joy, Lost dreams, mum of child with disability, Sorrow, wounds|0 Comments

The moment everything changes…

A defining moment can happen anywhere, for us it came at ten weeks old, in the Hammersmith hospital in London. It was the line in the sand that once stepped over, there was no turning back. ‘When my son was in the scanner for longer than expected, a battle began in my mind. Was this a good or bad sign? What [...]

Why my son won’t be accepting his 100% attendance award

Four reasons my son won't accept his 100% Attendance Award. No. 2 son has been awarded an evening at a soft play centre because he has 100% attendance at school. He loves going to soft play, he loves going out with his friends, we love it when school reward him BUT he won't be going. Here's why... 1) We [...]

By | July 1st, 2017|Categories: Uncategorized|Tags: , |107 Comments

Cast your vote, but it won’t change tomorrow

#vote2017 The snap General election, geared at making our nation more stable and stronger for the future, is here.  For the third time in as many years, the UK sits on the brink, but will tomorrow bring change? There are certain experiences in life that bring out the best and worst in people. Parenthood, terrorist attacks and general elections are [...]

By | June 8th, 2017|Categories: Uncategorized|0 Comments

5 Reasons to Turn Up the Volume

Events this week has reminded us all how life can change in a minute. The tragedy in Manchester has shattered the hearts and lives of so many families. For 49,000 families in the UK, we know the reality of a life defining moment. Our children have a life-limiting diagnosis and so we have experienced first hand that instant when everything [...]

A world of conflicted truth

The truth is my son is wonderful. It’s true our lives are good. It’s true I am lucky and blessed in so many ways. It is true he is precious and unique, loved and created. It’s true he fills our home with love and has taught us all how to be better humans. It is true that he is more healed [...]