Blog 2017-05-24T09:23:48+00:00

Losing control

Ever feel like you are losing control? One of the first things to disappear, when I became the parent of a child with complex needs, was a sense of control. Once I foolishly thought I was the master of your own destiny. Suddenly, the weeks ahead of me were moulded and shaped by a growing list of professionals and [...]

(Not) Easy like a Sunday morning

What is easy about a weekend? I often get that Monday feeling on a Friday afternoon. It marks the start of me juggling the expectations and responsibilities. The struggle to rest, relax, have family time and 24/7 care. The Commodores classic 1970’s hit song, Easy like a Sunday morning, was a song on a jazz and soul compilation album [...]

By | October 12th, 2018|Categories: cerebral palsy, disability, easy, family, weekend|0 Comments

Dear Professionals…

Dear Professionals, I’m not sure where to start because there are so many of you. Maybe you’re one of the many therapists (OT, PT, SALT) who collude and agree when it’s best to meet and then ask I adhere to your agreed date and time. Please know, I’m grateful for your input, skills and knowledge. I know you are [...]

By | October 7th, 2018|Categories: Uncategorized|0 Comments

Children shouldn’t come first

I’ve heard it said, that children come first. We say it in lots of different ways; ‘It's the kids that matter.’ ‘You need to do what’s best for the children.’ Although I am passionate about the rights of children and their well-being, in our family at least, children don't come first. I have come to see that it is an [...]

By | October 3rd, 2018|Categories: exhaustion, family, Mother of child with special needs, parenting|0 Comments

The truth will set you free?

The glare of the theatre lights warmed my skin yet my body shook. The cesarean section was about to start. Everyone was poised, ready to carry out their designated duties yet I felt inadequate and out of my depth. I’d been in this environment before but this was different. Suddenly I wasn’t a face amongst the milieu of professionals [...]

By | September 19th, 2018|Categories: acceptance, The skies I'm under, Truth, Uncategorized|0 Comments

Learning to cope with the staring stranger

Stop looking at me! It’s the summer holidays. It has rained a whole of two days and siblings around the country are complaining about the most mundane things. Like, “MUM! He’s looking at funny. Tell him to stop." My eldest brother used to complain I breathed too loudly whilst he was watching the TV. He certainly used to look at [...]

By | July 30th, 2018|Categories: cerebral palsy, communication, disability, emotions, expectations|0 Comments