Blog 2017-05-24T09:23:48+00:00

100% Attendance Awards Government Petition

Challenging 100% Attendance Awards: There are many important things to make a noise about. Human trafficking, climate change, malaria epidemic, hunger, and the rights of LGBT are just a few that spring to mind. But in my little corner of the world, we are affected by ableism. Bringing up a family in a society that values people only because of [...]

By | October 6th, 2017|Categories: Uncategorized|4 Comments

“Please, Sir, I want some more.”

I was lying in bed this week and the image of Oliver floated into my head. I was debating with myself whether I dare ask for an increased care package for my son. “Please, sir, I want some more…” It's an iconic line from classic novel that has been retold to generations. I confess, I've never read the book [...]

By | September 13th, 2017|Categories: Help, Respite, Thriving not surviving|0 Comments

The pain of sharing someone else’s joy.

A woman dreamed of having her own garden. She pictured herself planting and tending flowers of all shapes and sizes. She hoped her borders would brim with colour and fragrance, laced with creepers displaying exotic blooms and a winding path through blossoms humming with wildlife. When she moved in to her forever home, it was nothing [...]

By | August 17th, 2017|Categories: garden, joy, Lost dreams, mum of child with disability, Sorrow, wounds|0 Comments

The moment everything changes…

A defining moment can happen anywhere, for us it came at ten weeks old, in the Hammersmith hospital in London. It was the line in the sand that once stepped over, there was no turning back. ‘When my son was in the scanner for longer than expected, a battle began in my mind. Was this a good or bad sign? What [...]

Why my son won’t be accepting his 100% attendance award

Four reasons my son won't accept his 100% Attendance Award. No. 2 son has been awarded an evening at a soft play centre because he has 100% attendance at school. He loves going to soft play, he loves going out with his friends, we love it when school reward him BUT he won't be going. Here's why... 1) We [...]

By | July 1st, 2017|Categories: featured, Uncategorized|Tags: , |114 Comments

Cast your vote, but it won’t change tomorrow

#vote2017 The snap General election, geared at making our nation more stable and stronger for the future, is here.  For the third time in as many years, the UK sits on the brink, but will tomorrow bring change? There are certain experiences in life that bring out the best and worst in people. Parenthood, terrorist attacks and general elections [...]

By | June 8th, 2017|Categories: Uncategorized|0 Comments