cerebral palsy

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(Not) Easy like a Sunday morning

By | 2018-10-16T09:36:50+00:00 October 12th, 2018|Categories: cerebral palsy, disability, easy, family, weekend|

What is easy about a weekend? I often get that Monday feeling on a Friday afternoon. It marks the start of me juggling the expectations and responsibilities. The struggle to rest, relax, have family time and 24/7 care. The Commodores classic 1970’s hit song, Easy like a Sunday morning, was a song on a jazz [...]

Learning to cope with the staring stranger

By | 2018-07-30T07:28:20+00:00 July 30th, 2018|Categories: cerebral palsy, communication, disability, emotions, expectations|

Stop looking at me! It’s the summer holidays. It has rained a whole of two days and siblings around the country are complaining about the most mundane things. Like, “MUM! He’s looking at funny. Tell him to stop." My eldest brother used to complain I breathed too loudly whilst he was watching the TV. He certainly [...]

Living on the Edge: My life as a parent

By | 2017-10-20T21:27:50+00:00 February 8th, 2017|Categories: acceptance, cerebral palsy, complications, disability, exhaustion, family, living on the edge, Mother of child with special needs, mum of child with disability, Uncategorized|

Is it just me? Or does anyone else feel like they are desperately trying to keep their house in order whilst stopping themselves from falling over the edge? I’ve always enjoyed living life a little on the edge. I love travelling and feeling like the foreigner. I’ve even been known to eat something that is a day [...]

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5 little things that make a Big Difference

By | 2018-10-05T20:42:28+00:00 February 8th, 2017|Categories: cerebral palsy, Don't call me Mum, featured, mum of child with disability, parenting, Parents as partners, Uncategorized|

Little things can make a difference. When I worked as a  nurse in A&E, I knew that even in the middle of emergency procedures, how I treated the patient and family would be remembered. As a parent standing over my fitting son while the doctors fought to stop an hour long seizure, this simple fact went from theory to [...]

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Hello autumn, goodbye summer

By | 2017-06-15T11:57:36+00:00 October 3rd, 2016|Categories: cerebral palsy, cherishing today, disability, expectations, mum of child with disability, summer, Uncategorized|

As much as I love the summer, I’m glad it is autumn. It's time to collect conkers and pick the last few blackberries. Although I will miss the brighter days and warm sun on my face, the summer is my toughest season.

A nine-year-old’s open letter…

By | 2017-06-15T11:56:56+00:00 July 7th, 2016|Categories: cerebral palsy, cherishing today, disability, family, sibling, special needs, special needs sibling, Uncategorized|

"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."

An open letter to the Local Council that said NO…

By | 2018-01-27T07:18:59+00:00 July 1st, 2016|Categories: cerebral palsy, cherishing today, disability, family, mum of child with disability, Uncategorized|

It is a common phenomenon for parents of children with complex needs to hear 'No' from professionals and councils. A universal experience is our need to fight for our children.

Top 6 Disability Hacks

By | 2018-02-15T11:30:54+00:00 May 6th, 2016|Categories: cerebral palsy, disability, featured, hack, mum of child with disability, special needs, Uncategorized, wheelchair|

Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]

Top 11 Advantages to Parenting a Disabled Child

By | 2018-10-16T09:35:44+00:00 January 8th, 2016|Categories: cerebral palsy, disability, featured, Mother of child with special needs, mum, mum of child with disability, parenting, special needs, The skies I'm under|

Parenting a disabled child gets a bad press, so here is my Top 11 advantages to parenting a disabled child but there are many more.

Going Out in My Underwear

By | 2017-06-15T11:32:31+00:00 December 15th, 2015|Categories: book, cerebral palsy, Mother of child with special needs, mum of child with disability, parenting, The skies I'm under|

Have you ever dreamt that you walk into work and everyone is staring at you? At first you smile at the on-looking faces, then you begin to wonder why you're getting so much attention. Suddenly, your heart races as you anxiously look down to discover you aren’t wearing any trousers. Everyone is staring because you've stepped outside in your underwear.