cerebral palsy

/cerebral palsy

“I’m never going to write a book.”

By | 2017-10-31T13:43:18+00:00 November 20th, 2015|Categories: book, cerebral palsy, Healing, Inspiring, The skies I'm under|

A couple of weeks after an MRI scan confirmed my son’s severe brain damage, I stood over the sink washing dishes. A friend from church had come over to offer support and we talked. “You know, I just don't know what God is up to.” I seethed. “What do you mean?” “Well, if all this is [...]

Birthday or Anniversary

By | 2017-06-15T11:29:45+00:00 October 12th, 2015|Categories: anniversary, birthday, cerebral palsy, disability, family, Mother of child with special needs, mum, mum of child with disability, parenting, special needs|

12th October 2005 was Sam's birth day and my defining moment. 10 years ago today I had one of the toughest days of my life. My world was turned upside down and I became a mum. Motherhood is a magnifying glass. It amplifies your emotions, your strengths, your weaknesses and your LOVE. When you watch your [...]

Asylum to the Palladium

By | 2017-06-15T11:27:22+00:00 July 1st, 2015|Categories: Asylum, cerebral palsy, disability, expectations, Hope for the future, Inspiring, mum, Palladium, worth|

Over sixty years ago twin daughters were removed from their mother. Last week my son performed at the London Palladium. This is the story of how my family went from the Asylum to the Palladium.

Doors and Whitewashed walls

By | 2017-06-15T11:25:39+00:00 January 29th, 2015|Categories: cerebral palsy, epilepsy, family, mum of child with disability, parenting, priorities|

This week I stepped in the door of a local Rotary club meeting and received a warm welcome. My husband sorted the kids for school while I sat down, ate breakfast and pretended to be a grown up for a couple of hours. The people I met were really friendly and they listened intently to my story [...]

Surviving Stranger Sympathy: A guide to Parents of a Disabled Child

By | 2017-06-15T10:58:48+00:00 September 19th, 2014|Categories: cerebral palsy, expectations, mum of child with disability, special needs|

The other day I was in our local supermarket when a Stranger stopped her work, looked sympathetically between me and Sam and sighed 'Aaaaaah!', as though slightly disappointed. Having read many blogs and articles I know this experience is not unique. It seems many parents become indignant and frustrated, wanting to correct  the stranger with explanations [...]

Top 10 Advantages to Parenting a Disabled Child

By | 2017-06-15T10:49:19+00:00 July 31st, 2014|Categories: Advantages, cerebral palsy, cherishing today, Uncategorized|

As well as trials, there are many advantages to loving and parenting a child with severe and complex disabilities. Here are my Top 10 Advantages. 1) Disabled Bays No more aimlessly driving around a crowded car-park. With your precious Blue Badge, you get to park in Disabled bays (assuming some unworthy driver hasn't already nabbed it). [...]

6 Secrets to Living Beyond Blame

By | 2017-06-15T10:16:53+00:00 June 12th, 2014|Categories: acceptance, cerebral palsy, compensation, legal action, mum of child with disability|Tags: |

I needed to learn the secrets of living beyond blame when my life was suddenly defined by the consequences of a decision I made. My Story Eight and a half years ago I woke in the middle of the night with a niggling sense of uncertainty. Unable to settle I slunk out of bed and sat in a dark, [...]

Guilty or Not Guilty?

By | 2018-04-04T18:21:32+00:00 April 30th, 2014|Categories: Advantages, balance and choice., cerebral palsy, mum of child with disability|

Our spring-break did not turn out as I had hoped. For reasons beyond my control my plans for quality time with both my boys failed to happen and I was left with a sense of guilt. It seems since the day SD was born I acquired the innate ability to feel guilty. I have a tendency [...]

Letting in the Light

By | 2018-04-04T16:55:53+00:00 April 11th, 2014|Categories: cerebral palsy, exhaustion, Fatigue, mum, parenting, special needs, value, Walk in my footsteps|

"You have not walked in my footsteps, danced in my shoes, or lived in my world. Do not judge me, point your fingers at me, or become experts on my life." Kate Baker I have a warm memory of dancing on my dad's feet as a little girl. I would place my tiptoes on his shiny [...]