Letting in the Light

By |2018-04-04T16:55:53+01:00April 11th, 2014|Categories: cerebral palsy, exhaustion, Fatigue, mum, parenting, special needs, value, Walk in my footsteps|

"You have not walked in my footsteps, danced in my shoes, or lived in my world. Do not judge me, point your fingers at me, or become experts on my life." Kate Baker I have a warm memory of dancing on my dad's feet as a little girl. I would place my tiptoes on his shiny [...]

The Sun in our Solar System

By |2021-01-19T12:59:12+00:00April 1st, 2014|Categories: cerebral palsy, disability, mum, mum of child with disability, parenting, planets, priorities, solar system|

My middle is a curious, scientist. He has always asked questions, mulled over information then applied it to life. He's a geek, like his Dad, and interested in wildlife, space and history. From a young age the planets of our solar system hung suspended above his bed. Then when the lights are switched off, clusters of [...]

Flat-lining

By |2017-06-15T10:05:39+01:00March 14th, 2014|Categories: cerebral palsy, CTG, disability, EEG, epilepsy, seizures, sleeping trace|

At a recent admission to Great Ormond Street Hospital (GOSH) I sat in our small side room gazing through the dim light at blue and red lines dancing across a large screen. My son had been admitted for a prolonged EEG, to investigate his epilepsy. Having pressed a button to indicate he was now sleeping, I [...]

Top 10 Advantages to Parenting a Disabled Child

By |2017-11-07T15:37:31+00:00March 10th, 2014|Categories: Advantages, cerebral palsy, disability, special needs, Top 10|

As well as trials there are many advantages to loving and parenting a child with severe and complex disabilities. Here are my Top 10 Advantages. 1) Disabled Bays No more aimlessly driving around a crowded car-park. With your precious Blue Badge you get to park in Disabled bays, assuming some unworthy driver hasn't already nabbed it. If all else fails there's always forbidden [...]

Loving the skies I’m under

By |2017-06-15T09:49:22+01:00February 21st, 2014|Categories: acceptance, cerebral palsy, chance, disability, parenting, risk, special needs, what if|

In 1985 Marty McFly hit the big screen for the first time. Back to the Future was epic, with its DeLorean time travel machine, flux capacitor and crazy Doc screeching, "1.21 Gigawatts!". Marty finds himself in 1955 and has to get back to the future whilst ensuring his parents still fall in love.The whole concept of [...]

Priceless

By |2017-06-15T09:45:57+01:00February 15th, 2014|Categories: cerebral palsy, disability, special needs, value, worth|

I have been known to occasionally watch day time TV classics such as Cash in the Attic or Flog it! My husband is much more highbrow, and saves himself for the Antiques Road Show (what a rock and roll couple we are). Both of these programmes examine items and place a value on them. What are [...]

A Road Less Travelled

By |2017-10-09T15:31:46+01:00February 5th, 2014|Categories: cerebral palsy, disability, mum, parenting, prayer, special needs, travelling|

It's amazing to think that 2004 was 10 years ago. In that year, Tony Blair was Prime minister, the Olympics were held in Athens and the actor Christopher Reeve died. It was also the year that I set off with my husband for a slightly delayed 'gap year'. First travelling to Uganda, to work as a [...]

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