disability

/disability

The Sun in our Solar System

By | 2017-06-15T10:09:12+00:00 April 1st, 2014|Categories: cerebral palsy, disability, mum, mum of child with disability, parenting, planets, priorities, solar system|

This week JJ (youngest son) surprised me with a question: "Can we go trick or treating?" "It's ages away until trick or treating time, I responded. "Well when it is, can we go trick or treating?" I hesitated in consideration. "I want to dress up as a ghost." "Oh, ok, I said, trying to sound interested. [...]

Flat-lining

By | 2017-06-15T10:05:39+00:00 March 14th, 2014|Categories: cerebral palsy, CTG, disability, EEG, epilepsy, seizures, sleeping trace|

At a recent admission to Great Ormond Street Hospital (GOSH) I sat in our small side room gazing through the dim light at blue and red lines dancing across a large screen. My son had been admitted for a prolonged EEG, to investigate his epilepsy. Having pressed a button to indicate he was now sleeping, I [...]

Top 10 Advantages to Parenting a Disabled Child

By | 2017-11-07T15:37:31+00:00 March 10th, 2014|Categories: Advantages, cerebral palsy, disability, special needs, Top 10|

As well as trials there are many advantages to loving and parenting a child with severe and complex disabilities. Here are my Top 10 Advantages. 1) Disabled Bays No more aimlessly driving around a crowded car-park. With your precious Blue Badge you get to park in Disabled bays, assuming some unworthy driver hasn't already nabbed it. If all else fails there's always forbidden [...]

Snot, libraries and success

By | 2017-06-15T10:03:00+00:00 February 28th, 2014|Categories: communication, disability, expectations, family, library, Snot, special needs, success|

I've been wondering: what does success look like? Take a trip to the library. It would start with me wondering up the road on a bright sunny day, listening to the birds sing, feeling carefree and spring-like. I chat to both my boys about the fun we've already had, doing crafts and baking earlier in the [...]

Loving the skies I’m under

By | 2017-06-15T09:49:22+00:00 February 21st, 2014|Categories: acceptance, cerebral palsy, chance, disability, parenting, risk, special needs, what if|

In 1985 Marty McFly hit the big screen for the first time. Back to the Future was epic, with its DeLorean time travel machine, flux capacitor and crazy Doc screeching, "1.21 Gigawatts!". Marty finds himself in 1955 and has to get back to the future whilst ensuring his parents still fall in love.The whole concept of [...]

Priceless

By | 2017-06-15T09:45:57+00:00 February 15th, 2014|Categories: cerebral palsy, disability, special needs, value, worth|

I have been known to occasionally watch day time TV classics such as Cash in the Attic or Flog it! My husband is much more highbrow, and saves himself for the Antiques Road Show (what a rock and roll couple we are). Both of these programmes examine items and place a value on them. What are [...]

A Road Less Travelled

By | 2017-10-09T15:31:46+00:00 February 5th, 2014|Categories: cerebral palsy, disability, mum, parenting, prayer, special needs, travelling|

It's amazing to think that 2004 was 10 years ago. In that year, Tony Blair was Prime minister, the Olympics were held in Athens and the actor Christopher Reeve died. It was also the year that I set off with my husband for a slightly delayed 'gap year'. First travelling to Uganda, to work as a [...]

Tears in Heaven (A parable)

By | 2018-02-02T08:44:29+00:00 February 1st, 2014|Categories: disability, Healing, heaven, prayer, special needs|

There was once a father who loved his son. When the son was eight years old, he contracted an infection that developed into meningitis. As a result the son suffered brain damage that affected his lower limbs and speech.  From that day on his father cared for him and fought back tears. Because the father dearly [...]