expectations

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The moment everything changes…

By | 2017-07-04T09:37:32+00:00 July 4th, 2017|Categories: disability, expectations, hope, mum of child with disability|Tags: , , |

A defining moment can happen anywhere, for us it came at ten weeks old, in the Hammersmith hospital in London. It was the line in the sand that once stepped over, there was no turning back. ‘When my son was in the scanner for longer than expected, a battle began in my mind. Was this a [...]

A world of conflicted truth

By | 2017-06-15T12:07:08+00:00 May 17th, 2017|Categories: disability, exhaustion, expectations, Mother of child with special needs, mum of child with disability, Tearful, Truth|

The truth is my son is wonderful. It’s true our lives are good. It’s true I am lucky and blessed in so many ways. It is true he is precious and unique, loved and created. It’s true he fills our home with love and has taught us all how to be better humans. It is true that [...]

Choice: Real or Myth (Part 1)

By | 2017-06-15T12:04:27+00:00 April 20th, 2017|Categories: birth, choice, expectations, pregnancy, risk|

Two years ago, I was sitting on my hospital bed alone, eight months pregnant. Unaware I would need an emergency c-section 3 hours later, I started thinking about choice and wrote this: 'It's the night before my third son will be born. Nearly four weeks before his due date and three weeks ahead of schedule. Once [...]

I’m not a Supermum…and that’s ok.

By | 2017-06-15T12:02:31+00:00 February 19th, 2017|Categories: disability, exhaustion, expectations, family, Mother of child with special needs, mum of child with disability, Simple Stuff Works|

For about three seconds in 2005 (the year I became a mum) I thought I could be a SuperMum. It didn’t last long. Unfortunately, I spent a few years trying to pretend to be a Supermum. Every morning I donned my Lycra suit and tried to trick everyone into thinking I’m Superman. Having a son with severe disabilities meant [...]

Hello autumn, goodbye summer

By | 2017-06-15T11:57:36+00:00 October 3rd, 2016|Categories: cerebral palsy, cherishing today, disability, expectations, mum of child with disability, summer, Uncategorized|

As much as I love the summer, I’m glad it is autumn. It's time to collect conkers and pick the last few blackberries. Although I will miss the brighter days and warm sun on my face, the summer is my toughest season.

Asylum to the Palladium

By | 2017-06-15T11:27:22+00:00 July 1st, 2015|Categories: Asylum, cerebral palsy, disability, expectations, Hope for the future, Inspiring, mum, Palladium, worth|

Over sixty years ago twin daughters were removed from their mother. Last week my son performed at the London Palladium. This is the story of how my family went from the Asylum to the Palladium.

Hidden Miracles; lessons from the Nativity

By | 2017-06-15T11:24:54+00:00 December 20th, 2014|Categories: Christmas, disability, expectations, mum of child with disability, Uncategorized|

Nine years ago today I woke cloaked by darkness and breastfed my firstborn son. Within a couple of hours we bundled our infant into his pushchair and headed towards the train station. We began a journey of Truth with Hope travelling alongside. Sam had an appointment in London for an MRI scan of his brain. Our [...]

Surviving Stranger Sympathy: A guide to Parents of a Disabled Child

By | 2017-06-15T10:58:48+00:00 September 19th, 2014|Categories: cerebral palsy, expectations, mum of child with disability, special needs|

The other day I was in our local supermarket when a Stranger stopped her work, looked sympathetically between me and Sam and sighed 'Aaaaaah!', as though slightly disappointed. Having read many blogs and articles I know this experience is not unique. It seems many parents become indignant and frustrated, wanting to correct  the stranger with explanations [...]

Snot, libraries and success

By | 2017-06-15T10:03:00+00:00 February 28th, 2014|Categories: communication, disability, expectations, family, library, Snot, special needs, success|

I've been wondering: what does success look like? Take a trip to the library. It would start with me wondering up the road on a bright sunny day, listening to the birds sing, feeling carefree and spring-like. I chat to both my boys about the fun we've already had, doing crafts and baking earlier in the [...]