family

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(Not) Easy like a Sunday morning

By | 2018-10-16T09:36:50+00:00 October 12th, 2018|Categories: cerebral palsy, disability, easy, family, weekend|

What is easy about a weekend? I often get that Monday feeling on a Friday afternoon. It marks the start of me juggling the expectations and responsibilities. The struggle to rest, relax, have family time and 24/7 care. The Commodores classic 1970’s hit song, Easy like a Sunday morning, was a song on a jazz [...]

Children shouldn’t come first

By | 2018-10-03T15:27:36+00:00 October 3rd, 2018|Categories: exhaustion, family, Mother of child with special needs, parenting|

I’ve heard it said, that children come first. We say it in lots of different ways; ‘It's the kids that matter.’ ‘You need to do what’s best for the children.’ Although I am passionate about the rights of children and their well-being, in our family at least, children don't come first. I have come to see [...]

I’m not a Supermum…and that’s ok.

By | 2018-06-04T09:42:09+00:00 February 19th, 2017|Categories: disability, exhaustion, expectations, family, Mother of child with special needs, mum of child with disability, Simple Stuff Works|

For about three seconds in 2005 (the year I became a mum) I thought I could be a SuperMum. It didn’t last long. Unfortunately, I spent a few years trying to pretend to be a Supermum. Every morning I donned my Lycra suit and tried to trick everyone into thinking I’m Superwoman. Having a son with severe disabilities meant [...]

Living on the Edge: My life as a parent

By | 2017-10-20T21:27:50+00:00 February 8th, 2017|Categories: acceptance, cerebral palsy, complications, disability, exhaustion, family, living on the edge, Mother of child with special needs, mum of child with disability, Uncategorized|

Is it just me? Or does anyone else feel like they are desperately trying to keep their house in order whilst stopping themselves from falling over the edge? I’ve always enjoyed living life a little on the edge. I love travelling and feeling like the foreigner. I’ve even been known to eat something that is a day [...]

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A nine-year-old’s open letter…

By | 2017-06-15T11:56:56+00:00 July 7th, 2016|Categories: cerebral palsy, cherishing today, disability, family, sibling, special needs, special needs sibling, Uncategorized|

"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."

An open letter to the Local Council that said NO…

By | 2018-01-27T07:18:59+00:00 July 1st, 2016|Categories: cerebral palsy, cherishing today, disability, family, mum of child with disability, Uncategorized|

It is a common phenomenon for parents of children with complex needs to hear 'No' from professionals and councils. A universal experience is our need to fight for our children.

Selfies – everyday moment, forever memory

By | 2017-06-15T11:54:46+00:00 May 25th, 2016|Categories: book, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, selfies, special needs, The skies I'm under, Uncategorized|

There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.

Down Syndrome Test – measuring the value of life

By | 2017-10-31T08:54:28+00:00 January 18th, 2016|Categories: Advantages, disability, Down Syndrome, family, hope, Mother of child with special needs, mum of child with disability, priorities, Uncategorized, value, worth|

The debate about the ‘Down Syndrome Blood Test’ is raging. Unfortunately, I think a lot of it fails to question whether any blood test can accurately measure the value of a life.

Birthday or Anniversary

By | 2017-06-15T11:29:45+00:00 October 12th, 2015|Categories: anniversary, birthday, cerebral palsy, disability, family, Mother of child with special needs, mum, mum of child with disability, parenting, special needs|

12th October 2005 was Sam's birth day and my defining moment. 10 years ago today I had one of the toughest days of my life. My world was turned upside down and I became a mum. Motherhood is a magnifying glass. It amplifies your emotions, your strengths, your weaknesses and your LOVE. When you watch your [...]

Doors and Whitewashed walls

By | 2017-06-15T11:25:39+00:00 January 29th, 2015|Categories: cerebral palsy, epilepsy, family, mum of child with disability, parenting, priorities|

This week I stepped in the door of a local Rotary club meeting and received a warm welcome. My husband sorted the kids for school while I sat down, ate breakfast and pretended to be a grown up for a couple of hours. The people I met were really friendly and they listened intently to my story [...]