Mother of child with special needs

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Good parent, bad emotions. #worldmentalhealthday

By | 2017-10-16T15:04:15+00:00 October 10th, 2017|Categories: emotions, exhaustion, Mother of child with special needs, mum of child with disability, Uncategorized, worldmentalhealthday|

“It’s just so hard, it's constant, not just physically but emotionally and mentally.” I muster every ounce of ‘I hear you’, with a simple nod. In slightly more frantic tones she continues, “it isn’t that it isn’t good, it is wonderful, she is deligh…” “Stop, you don’t need to explain.” Three times this week I have [...]

5 Reasons to Turn Up the Volume

By | 2017-06-15T09:32:35+00:00 May 24th, 2017|Categories: #upthevolume, Children's Hospice Week, HRH Duchess Cambridge, Mother of child with special needs, Together for Short Lives, Uncategorized|

Events this week has reminded us all how life can change in a minute. The tragedy in Manchester has shattered the hearts and lives of so many families. For 49,000 families in the UK, we know the reality of a life defining moment. Our children have a life-limiting diagnosis and so we have experienced first hand [...]

A world of conflicted truth

By | 2017-06-15T12:07:08+00:00 May 17th, 2017|Categories: disability, exhaustion, expectations, Mother of child with special needs, mum of child with disability, Tearful, Truth|

The truth is my son is wonderful. It’s true our lives are good. It’s true I am lucky and blessed in so many ways. It is true he is precious and unique, loved and created. It’s true he fills our home with love and has taught us all how to be better humans. It is true that [...]

Is it too much to ask, to not have to fight?

By | 2017-06-15T12:03:03+00:00 February 23rd, 2017|Categories: Changing places, disability, fighting, Mother of child with special needs, mum of child with disability, Uncategorized|

**WARNING IMAGINATION REQUIRED** Imagine me in a Miss World competition. Obviously to do this, you'd have to believe I've abandoned any feminist ideals, grown a foot in height, enhanced my breasts and shrunk my waist. But, bear with me... Should I ever be a contestant on Miss World and the MC asks me what would be my one wish, it probably wouldn't be 'World [...]

I’m not a Supermum…and that’s ok.

By | 2017-06-15T12:02:31+00:00 February 19th, 2017|Categories: disability, exhaustion, expectations, family, Mother of child with special needs, mum of child with disability, Simple Stuff Works|

For about three seconds in 2005 (the year I became a mum) I thought I could be a SuperMum. It didn’t last long. Unfortunately, I spent a few years trying to pretend to be a Supermum. Every morning I donned my Lycra suit and tried to trick everyone into thinking I’m Superman. Having a son with severe disabilities meant [...]

Living on the Edge: My life as a parent

By | 2017-06-15T12:01:44+00:00 February 8th, 2017|Categories: acceptance, cerebral palsy, complications, disability, exhaustion, family, living on the edge, Mother of child with special needs, mum of child with disability, Uncategorized|

Is it just me? Or does anyone else feel like they are desperately trying to keep their house in order whilst stopping themselves from falling over the edge? I’ve always enjoyed living life a little on the edge. I love travelling and feeling like the foreigner. I’ve even been known to eat something that is a day [...]

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Selfies – everyday moment, forever memory

By | 2017-06-15T11:54:46+00:00 May 25th, 2016|Categories: book, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, selfies, special needs, The skies I'm under, Uncategorized|

There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.

Down Syndrome Test – measuring the value of life

By | 2017-06-15T11:34:19+00:00 January 18th, 2016|Categories: Advantages, disability, Down Syndrome, family, hope, Mother of child with special needs, mum of child with disability, priorities, Uncategorized, value, worth|

The debate about the ‘Down Syndrome Blood Test’ is raging. Unfortunately, I think a lot of it fails to question whether any blood test can accurately measure the value of a life.

Top 11 Advantages to Parenting a Disabled Child

By | 2017-06-15T11:33:31+00:00 January 8th, 2016|Categories: cerebral palsy, disability, Mother of child with special needs, mum, mum of child with disability, parenting, special needs, The skies I'm under|

Parenting a disabled child gets a bad press, so here is my Top 11 advantages to parenting a disabled child but there are many more.

Going Out in My Underwear

By | 2017-06-15T11:32:31+00:00 December 15th, 2015|Categories: book, cerebral palsy, Mother of child with special needs, mum of child with disability, parenting, The skies I'm under|

Have you ever dreamt that you walk into work and everyone is staring at you? At first you smile at the on-looking faces, then you begin to wonder why you're getting so much attention. Suddenly, your heart races as you anxiously look down to discover you aren’t wearing any trousers. Everyone is staring because you've stepped outside in your underwear.