mum of child with disability

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An open letter to the Local Council that said NO…

By | 2018-01-27T07:18:59+00:00 July 1st, 2016|Categories: cerebral palsy, cherishing today, disability, family, mum of child with disability, Uncategorized|

It is a common phenomenon for parents of children with complex needs to hear 'No' from professionals and councils. A universal experience is our need to fight for our children.

Selfies – everyday moment, forever memory

By | 2017-06-15T11:54:46+00:00 May 25th, 2016|Categories: book, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, selfies, special needs, The skies I'm under, Uncategorized|

There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.

Top 6 Disability Hacks

By | 2018-02-15T11:30:54+00:00 May 6th, 2016|Categories: cerebral palsy, disability, featured, hack, mum of child with disability, special needs, Uncategorized, wheelchair|

Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]

Down Syndrome Test – measuring the value of life

By | 2017-10-31T08:54:28+00:00 January 18th, 2016|Categories: Advantages, disability, Down Syndrome, family, hope, Mother of child with special needs, mum of child with disability, priorities, Uncategorized, value, worth|

The debate about the ‘Down Syndrome Blood Test’ is raging. Unfortunately, I think a lot of it fails to question whether any blood test can accurately measure the value of a life.

Top 11 Advantages to Parenting a Disabled Child

By | 2018-10-16T09:35:44+00:00 January 8th, 2016|Categories: cerebral palsy, disability, featured, Mother of child with special needs, mum, mum of child with disability, parenting, special needs, The skies I'm under|

Parenting a disabled child gets a bad press, so here is my Top 11 advantages to parenting a disabled child but there are many more.

Going Out in My Underwear

By | 2017-06-15T11:32:31+00:00 December 15th, 2015|Categories: book, cerebral palsy, Mother of child with special needs, mum of child with disability, parenting, The skies I'm under|

Have you ever dreamt that you walk into work and everyone is staring at you? At first you smile at the on-looking faces, then you begin to wonder why you're getting so much attention. Suddenly, your heart races as you anxiously look down to discover you aren’t wearing any trousers. Everyone is staring because you've stepped outside in your underwear.

Birthday or Anniversary

By | 2017-06-15T11:29:45+00:00 October 12th, 2015|Categories: anniversary, birthday, cerebral palsy, disability, family, Mother of child with special needs, mum, mum of child with disability, parenting, special needs|

12th October 2005 was Sam's birth day and my defining moment. 10 years ago today I had one of the toughest days of my life. My world was turned upside down and I became a mum. Motherhood is a magnifying glass. It amplifies your emotions, your strengths, your weaknesses and your LOVE. When you watch your [...]

Doors and Whitewashed walls

By | 2017-06-15T11:25:39+00:00 January 29th, 2015|Categories: cerebral palsy, epilepsy, family, mum of child with disability, parenting, priorities|

This week I stepped in the door of a local Rotary club meeting and received a warm welcome. My husband sorted the kids for school while I sat down, ate breakfast and pretended to be a grown up for a couple of hours. The people I met were really friendly and they listened intently to my story [...]

Hidden Miracles; lessons from the Nativity

By | 2017-06-15T11:24:54+00:00 December 20th, 2014|Categories: Christmas, disability, expectations, mum of child with disability, Uncategorized|

Nine years ago today I woke cloaked by darkness and breastfed my firstborn son. Within a couple of hours we bundled our infant into his pushchair and headed towards the train station. We began a journey of Truth with Hope travelling alongside. Sam had an appointment in London for an MRI scan of his brain. Our [...]