Dear Professionals…

By | 2018-10-16T09:38:00+00:00 October 7th, 2018|Categories: Uncategorized|

Dear Professionals, I’m not sure where to start because there are so many of you. Maybe you’re one of the many therapists (OT, PT, SALT) who collude and agree when it’s best to meet and then ask I adhere to your agreed date and time. Please know, I’m grateful for your input, skills and knowledge. [...]

The truth will set you free?

By | 2018-10-16T09:40:16+00:00 September 19th, 2018|Categories: acceptance, The skies I'm under, Truth, Uncategorized|

The glare of the theatre lights warmed my skin yet my body shook. The cesarean section was about to start. Everyone was poised, ready to carry out their designated duties yet I felt inadequate and out of my depth. I’d been in this environment before but this was different. Suddenly I wasn’t a face amongst [...]

I’m so not inspirational, but I know people who are.

By | 2018-03-24T21:26:53+00:00 March 23rd, 2018|Categories: Uncategorized|

In our family, we have sorry rules. Sounds up tight, I know, but wanted 'sorry' to be meaningful and helpful, not flippant and reactive. Sorry was being said too easily without thought and was quickly becoming meaningless. The sorry rules are simple and I stole them from Cuppacocoa parenting blog about A better way to say [...]

7 Ways to get the Best out of your Professional

By | 2018-03-16T19:45:13+00:00 March 13th, 2018|Categories: Uncategorized|

Getting the best out of your professional is the title of a workshop I developed for parents like me who have children with additional needs. Some people, particularly practitioners, may wince at the title. Yet families like mine are often referred to as clients, case-load or service-users. Seeing the table turned shines an interesting light [...]

“Never feed your son again.”

By | 2018-10-16T09:40:31+00:00 February 9th, 2018|Categories: Uncategorized|

   “Our recommendation is that you never feed your son orally again.” These words were spoken to me as I sat wedged along a corridor at Great Ormond Street Hospital. No box of tissues. No comfortable sofa. Less than ten words were used to inform me that my son would never eat another birthday cake, [...]

Can I really make a difference?

By | 2018-06-07T08:32:45+00:00 February 2nd, 2018|Categories: Uncategorized|

Some lovely people (probably my parents) have nominated me for the category of ‘Making a Difference’ at the BAPS blogging awards presented by Bringing us Together. It got me thinking, how do I want to make a difference? Firstly, the difference starts at home. There is no point in me speaking and writing to inform [...]

Mind the Gap: Parliament DCP manifesto launch

By | 2018-02-15T11:25:37+00:00 December 15th, 2017|Categories: Uncategorized|

On 29th November I was privileged to speak on behalf of parents at the Disabled Children's Partnership manifesto launch at Parliament. It was fantastic to see so many charities and influential people recognising the struggles families like mine face daily. It was refreshing to feel seen and heard, that people are acknowledging the #SecretLivesofUs and wanting [...]

Success and how to measure it.

By | 2017-11-03T14:56:06+00:00 October 16th, 2017|Categories: Uncategorized|

The lights were on, the stage packed and hundreds of people sat in anticipation. For months, volunteers, family and friends had supported performers to practice every week. Last night, S was on stage with an amazing group of people for Music is Magic at the London Palladium. It is the second time he has had [...]

Good parent, bad emotions. #worldmentalhealthday

By | 2017-11-03T14:54:56+00:00 October 10th, 2017|Categories: emotions, exhaustion, Mother of child with special needs, mum of child with disability, Uncategorized, worldmentalhealthday|

“It’s just so hard, it's constant, not just physically but emotionally and mentally.” I muster every ounce of ‘I hear you’, with a simple nod. In slightly more frantic tones she continues, “it isn’t that it isn’t good, it is wonderful, she is deligh…” “Stop, you don’t need to explain.” Three times this week I [...]

100% Attendance Awards Government Petition

By | 2017-11-03T14:56:51+00:00 October 6th, 2017|Categories: Uncategorized|

Challenging 100% Attendance Awards: There are many important things to make a noise about. Human trafficking, climate change, malaria epidemic, hunger, and the rights of LGBT are just a few that spring to mind. But in my little corner of the world, we are affected by ableism. Bringing up a family in a society that values [...]