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Hello autumn, goodbye summer

By | 2017-06-15T11:57:36+00:00 October 3rd, 2016|Categories: cerebral palsy, cherishing today, disability, expectations, mum of child with disability, summer, Uncategorized|

As much as I love the summer, I’m glad it is autumn. It's time to collect conkers and pick the last few blackberries. Although I will miss the brighter days and warm sun on my face, the summer is my toughest season.

A nine-year-old’s open letter…

By | 2017-06-15T11:56:56+00:00 July 7th, 2016|Categories: cerebral palsy, cherishing today, disability, family, sibling, special needs, special needs sibling, Uncategorized|

"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."

An open letter to the Local Council that said NO…

By | 2018-01-27T07:18:59+00:00 July 1st, 2016|Categories: cerebral palsy, cherishing today, disability, family, mum of child with disability, Uncategorized|

It is a common phenomenon for parents of children with complex needs to hear 'No' from professionals and councils. A universal experience is our need to fight for our children.

Selfies – everyday moment, forever memory

By | 2017-06-15T11:54:46+00:00 May 25th, 2016|Categories: book, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, selfies, special needs, The skies I'm under, Uncategorized|

There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.

Children’s Hospice Week Starts 23rd May 2016

By | 2017-06-15T11:39:56+00:00 May 23rd, 2016|Categories: Uncategorized|

I know today is nearly over but it's the first day of Children's Hospice week so I wanted to say something. Being allowed to stay at a Children's Hospice, is one of those things no-one wants to be eligible for. There are lots of these 'clubs', small groups of people that deep down we don't want to be [...]

Top 6 Disability Hacks

By | 2018-02-15T11:30:54+00:00 May 6th, 2016|Categories: cerebral palsy, disability, featured, hack, mum of child with disability, special needs, Uncategorized, wheelchair|

Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]