As much as I love the summer, I’m glad it is autumn. It's time to collect conkers and pick the last few blackberries. Although I will miss the brighter days and warm sun on my face, the summer is my toughest season.
"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."
It is a common phenomenon for parents of children with complex needs to hear 'No' from professionals and councils. A universal experience is our need to fight for our children.
'Me before you' is being challenged by the disability community. Parents of disabled children have been called to take a stand. So, here I am speaking out about how 'Me before you' affected me.
There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.
Everyone's normal is different. Nearly 50,000 children and their family's, live with a life-shortening condition. There are many hidden stories, as people quietly live out their tough and precious 'normal'.
I know today is nearly over but it's the first day of Children's Hospice week so I wanted to say something. Being allowed to stay at a Children's Hospice, is one of those things no-one wants to be eligible for. There are lots of these 'clubs', small groups of people that deep down we don't want to be [...]
Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]
At the beginning of 2015, I wrote a blog about New Years and IEPs (Individual Education Plan), but it was never published, until now. 'We celebrated this New Years Eve with our family cooking and sitting around a fire in the garden. New Years Day is a mark in the sand. It is a point [...]
The glare of the theatre lights warmed my skin as my body shivered. The cesarean section was about to begin. Everyone was poised, ready to carry out their designated duties yet I felt inadequate and out of my depth. I’d been in this environment before but this was different. This time, I wasn’t a face amongst [...]