Over the last eight years, we have come across various equipment, organisations and professionals. Some have been helpful, others less so. Here are some links to stuff we have found useful. None of these are professional recommendations but simply a testimony to their usefulness to us as a family.
Fledglings is a national charity that finds and sells products that improve the lives of disabled children and their families. We have used them for swim wear, pants, incontinence sheets, wheelchair accessories and neckerchiefs.
Hippocampe – All Terrain Wheelchair
When we got our hippocampe through Make a Wish, it felt life changing. No longer were beaches, country lanes and hills out of bounds. With a bit of effort we have gone to very inaccessible places as a family – and have the photos to prove it!
SD loves swimming but it wasn’t until we found the Chailey float that we were able to stop holding him whilst in the water. He uses this and a float around his waist. Although he still needs very close supervision, SD gets to experience a level of independence.
There are many specialist companies out there and Google is my friend for finding what I need at any given time. Inclusive technology is our first port of call for any of SD’s technical gadgets. From switch access for his iPod to a wheelchair mount for his iPad and anything in between. Don’t forget to claim your products as VAT-free using the necessary form.
We have taken SD to the Bobath Centre since before he his first birthday. Getting funding is a struggle but their holistic approach to therapy really works for us. It isn’t a miracle treatment but it has been fundamental in us helping SD get to where he is today in terms of communication, lack of physical complications, toileting and positive play experiences together.
We have been to Portugal as a family twice. The holiday accommodation with Tregooselet is like nothing else we have come across. The service provided by the British couple who own the property and live in site includes the use of a wheelchair adapted vehicle, airport transfers and fully adapted accommodation including a wealth of specialist equipment. It isn’t cheap but we found the provision exceptional and worth every penny.
For those in the US, CerebralPalsyguidance.com is a website brimming with information and facts about Cerebral Palsy.It is a comprehensive informational website on cerebral palsy. Their mission is to provide quality cerebral palsy information and assistance to families in need, including information on cerebral palsy symptoms, financial assistance and daily living articles.