Thank you for visiting my little island on the world-wide web.
Most people call me Rachel, Nurse or Mrs Wright but three special boys get to call me mum. In 2005, my eldest was born with a bump. He didn’t breathe on delivery and was diagnosed ten weeks later with having severe brain damage.
From then, my husband and I hurtled down an unmarked road of loving a child with complex disabilities and life-limiting epilepsy. Today I use my memories, experiences and skills to support families like mine and inform the practitioners who care for us.
Find out more about my life being a mum to three lovely boys, one of whom has severe and complex disabilities.
As a nurse and parent, I am well placed to develop and deliver training for practitioners who care for families of children with complex disabilities.
I’ve always been a talker and strongly believe in the power of story-telling. Being real and honest about the joys and challenges for parenting a child with complex disabilities can have a profound impact.
My book, The Skies I’m Under, is a raw and honest account of becoming the parent of a child with complex disabilities.
I discovered a love for writing when I realised it was just like talking but without the interruptions.
Find out when my latest speaking and training events are coming up.
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“Rachel produces fantastic resources, all fully referenced and evidence based yet accessible and powerful”
“Rachel’s presentation on our End of Life training day gave a true, open and honest insight into the journey of a parent of a child with a life limiting condition.”
“Rachel’s dedication and enthusiasm for her work is infectious. She speaks from the heart and is a true advocate for families and their children. It is a pleasure to work with her”