How do you help a child that hates anything new?

By |2017-06-15T10:07:52+01:00March 29th, 2014|Categories: discipline, parenting|

SD has always struggled with change. A new album is shouted through at least a dozen times before he tolerates listening to it but then it isn't long before he identifies a favourite song that makes him smile and laugh. Reading is similar. Where before I could introduce a new book in an afternoon read, now I [...]

I don’t like squeezing…

By |2017-06-15T10:06:27+01:00March 23rd, 2014|Categories: cherishing today, living in abundance, Mother of child with special needs, mum of child with disability, squeezing and treasuring|

I'm not talking about spots or half empty toothpaste tubes; I'm talking about life. As much as I go on about making the most of now, cherishing today and other such sentimental cliches, I'm very much against squeezing.Treasuring and squeezing are two very different things. When I squeeze an orange I get out a glass of [...]


By |2017-06-15T10:05:39+01:00March 14th, 2014|Categories: cerebral palsy, CTG, disability, EEG, epilepsy, seizures, sleeping trace|

At a recent admission to Great Ormond Street Hospital (GOSH) I sat in our small side room gazing through the dim light at blue and red lines dancing across a large screen. My son had been admitted for a prolonged EEG, to investigate his epilepsy. Having pressed a button to indicate he was now sleeping, I [...]

Top 10 Advantages to Parenting a Disabled Child

By |2017-11-07T15:37:31+00:00March 10th, 2014|Categories: Advantages, cerebral palsy, disability, special needs, Top 10|

As well as trials there are many advantages to loving and parenting a child with severe and complex disabilities. Here are my Top 10 Advantages. 1) Disabled Bays No more aimlessly driving around a crowded car-park. With your precious Blue Badge you get to park in Disabled bays, assuming some unworthy driver hasn't already nabbed it. If all else fails there's always forbidden [...]


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