SD has always struggled with change. A new album is shouted through at least a dozen times before he tolerates listening to it but then it isn't long before he identifies a favourite song that makes him smile and laugh. Reading is similar. Where before I could introduce a new book in an afternoon read, now I [...]
I'm not talking about spots or half empty toothpaste tubes; I'm talking about life. As much as I go on about making the most of now, cherishing today and other such sentimental cliches, I'm very much against squeezing.Treasuring and squeezing are two very different things. When I squeeze an orange I get out a glass of [...]
At a recent admission to Great Ormond Street Hospital (GOSH) I sat in our small side room gazing through the dim light at blue and red lines dancing across a large screen. My son had been admitted for a prolonged EEG, to investigate his epilepsy. Having pressed a button to indicate he was now sleeping, I [...]
As well as trials there are many advantages to loving and parenting a child with severe and complex disabilities. Here are my Top 10 Advantages. 1) Disabled Bays No more aimlessly driving around a crowded car-park. With your precious Blue Badge you get to park in Disabled bays, assuming some unworthy driver hasn't already nabbed it. If all else fails there's always forbidden [...]
