SD has always struggled with change. A new album is shouted through at least a dozen times before he tolerates listening to it but then it isn’t long before he identifies a favourite song that makes him smile and laugh.

Reading is similar. Where before I could introduce a new book in an afternoon read, now I can experience a full on tantrum with screams and tears until a favoured book is offered. The same with films, before he could enjoy various titles but nowadays if it isn’t in his Top 5 then is isn’t cutting the grade and tends to be shouted over.

His repertoire is shrinking and with time his capacity for patience is deteriorating.
For example, we went for a walk to the beach last weekend. SD was in his all terrain wheelchair and the fifteen minute walk down was very pleasant. He reached his arm out to hold our hand’s, vocalised his approval and happily enjoyed the walk without music. However, like a light switch, as soon as his wheelchair hit the sand he started screaming top volume for music. He was relentless and the tears flowed yet nothing had changed. We walked at the same pace, continued to talk and engage but it appeared as though he had decided that when on the beach he had to have music. Within a few short minutes and many sympathetic stares our parenting skills wained and once we got him to stop shouting and ask nicely, we gave him his much desired music. Smiles resumed and peace reigned.

SD 1: Mummy and Daddy O

Discipline and rewards are a real issue. SD can’t see or appreciate stickers, he can’t eat, so treats aren’t an option, and music and TV tend to be the things I’m trying to limit. Also I do question his ability to attribute rewards to behaviour. We do give him time out and remove him from situations he is disrupting but this doesn’t seem to produce any improvement in learned behaviour.

So is there anyone out there who can help? Do I accept or fight unwanted behaviour? Any advice from parenting your own children that I could adapt or principles I might find helpful? Please leave your comments and help if you can.


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