Holidays funnel my life. They distill my stresses and strains into a finite experience. They polarise the difference between being a mum to each of my boys.

Every parent knows that once you have children holidays are never the same again. Relaxing breaks riddled with lie-ins, evenings out and lazy pub lunches become a fond and distant memory.

It starts unravelling with the packing. The family sized car that was once more adequate suddenly becomes too small for a tiny baby and his parents. Equipment is needed for everything.

We had always planned to travel with our kids. I imagined myself trekking through India with a tot strapped to my chest, being all ‘Mother Nature’ like, but that didn’t happen. That was never going to happen.

Holiday packing…

As my kids grow up the differences in mothering each of them multiplies. Here’s a brief summary of our holiday’s packing for my two boys aged 7 and 8.

JJ Sam
 Clothes (Tops, bottoms, Pj’s, pants, socks and shoes) Same as Jonah (except most of them have been adapted) and add on extra spares for accidents, neckerchiefs, AFO’s (leg splints) and hand splints.
Walking boots 20kg all terrain wheelchair strapped to the top of our wheelchair adapted tank of a vehicle.
Scarf teddy (to help with sleeping) Memory foam mattress (yep, we pack a mattress for a holiday!) Adapted sheets to hold the foam supports that make up a sleep system to hold our son in place and weighted blanket.
No need to pack anything as we pass enough trees and bushes to use as a loo! Toilet seat (full size commode) and massage table to use as a changing bench.
Lego and books Ipod, speakers for wheelchair (these broke on the way – thank goodness for Amazon Prime), selection of DVD’s, iPad and books
Money for food and snacks Milk pump and charger, giving sets, containers, milk for 2 weeks (forget any of these and you’re stuffed, none can be bought in Tesco, Sainsburys or even Waitrose)
N/A Twelve different types of medication in various liquid and tablet form with accompanying syringes

Now I’m not detailing any of this to be grumpy. Each of these things means I can go out with my family. I appreciate the freedom we have today because there have been times when fits and ill-health have hampered our holidays.

That list, helps me feel justified in finding holidays exhausting. It is the same clock watching juggle of medications, feeds, lifting and toileting, but without the specialist equipment of home. Holidays may be exceptional and wonderful but they remain heavy, even with the help of my parents.

Take our walk to the beach yesterday afternoon. Holiday photo by beach
The road from our cottage snakes down a hill to the scenic Portbradden. Our trek is rewarded with an idyllic bay containing the smallest chapel in Northern Ireland. Quaint white and blue stone cottages and a spectacular view of steep green hills sweeping down to a long golden sandy beach. It’s only a ten-minute walk each way and my eldest son screamed for the duration. He didn’t stop. There were tears, snot, shouting the works (here’s the pic without the noisy sound track!).

I felt the need to explain his noisy tantrum to three different groups of people as his piercing screams broke the picturesque surroundings. When we got back I felt like I’d done a round with Mike Tyson. It’s hard not letting a difficult hour cloud an otherwise good day. I’m still learning to appreciate how far we have come rather than dwelling on what is still out of reach and there is always tomorrow.

Holiday memories…

Well tomorrow was today and as expected it was heavy and tiring but also incredibleholidays cuddle and wonderful. It was a truly perfect beach day, topped with dozing on the sand with my biggest boy in my arms.
I love my boys and I love traveling but those facts don’t make it easy to care for my boys and go on holiday.

Enjoying a holiday requires a very BIG helping of acceptance from me in order to enjoy what I can and recognise our limitations. Once I can see the beauty of good times woven alongside the harder times I begin to appreciate the pattern they create.

Sometimes I even let myself see how the grey of the struggle enhances the beauty and vibrancy of the golden moments.


They say life’s a journey.

You can read all about mine in ‘The Skies I’m Under’ available on Amazon or via the website


TSIU edited flyer