'Me before you' is being challenged by the disability community. Parents of disabled children have been called to take a stand. So, here I am speaking out about how 'Me before you' affected me.
There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.
Everyone's normal is different. Nearly 50,000 children and their family's, live with a life-shortening condition. There are many hidden stories, as people quietly live out their tough and precious 'normal'.
I know today is nearly over but it's the first day of Children's Hospice week so I wanted to say something. Being allowed to stay at a Children's Hospice, is one of those things no-one wants to be eligible for. There are lots of these 'clubs', small groups of people that deep down we don't want to be [...]
Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]