Blog2019-03-16T09:58:13+00:00

5 reasons why my son has a DNAR

It is reported in the BBC news yesterday (18th March 2021) that over the past year the CQC has identified 508 “Do not attempt resuscitation” (DNAR) orders which were inappropriately put in place without discussion with the person or family involved. There is evidence to suggest this is happening more frequently for people who have learning difficulties. This care is [...]

Keeping the peace

There has been a lot of talk about Harry and Megan this week. Polarising, hot-headed opinions including the passionate view point that being entirely uninterested is the only right reaction. It has made me wonder what it looks like to, "keep the peace" and whether attempts to keep the peace can result in perpetuating injustice and willingly ignoring the ravages [...]

Sunrise and chronic sorrow

I went for my weekly sunrise walk with a dear friend this morning. It started a few months ago in lockdown as yoga on the beach (45mins talking, 10mins yoga) but as recent weeks have brought the cold, we have taken to walking, talking and clinging onto steaming mugs of tea and coffee.   Going from the darkness to light [...]

Why I am PROUD of my son’s attendance award.

“Why my son won’t be accepting his 100% attendance award” went viral 4 years ago. The photo of one 9-year-old‘s left ear went round the world and was seen by millions of people - along with my rant about how much I dislike 100% Attendance Awards and how, in my opinion, they undervalue community and compassion. A lot [...]

By |July 17th, 2020|Categories: Uncategorized|0 Comments

“This is Bob, he has piles.”

Ever been at a work’s do and introduced a colleague by listing off their current ailments? “Hi, Steve, this is Bob. He has a stammer. Bob, meet Steve, he’s can’t sit for long because of his massive piles.” Of course not. I don’t introduce myself as, “Hi, I’m Rachel. I broke my wrist last year, ruptured my EPL and needed [...]

By |July 9th, 2020|Categories: Uncategorized|0 Comments

Leaving lockdown

If you had told me six months ago that any of the support we relied was going to be taken away from us as a family (until further notice), I would have considered locking myself in my bedroom. Ask me to home school ANY of my children = tears (there is a reason I am not a primary, secondary [...]