Camping with a disabled child

Before having children, holidays often consisted of lazy pub lunches, afternoon naps, late nights and spontaneous decisions. After children – well, I guess we all acknowledge, it is a ‘bit different’. When you have a child with additional needs though, just going outside the front door for a couple of hours can take an operation of military precision and preparation. [...]

By |August 11th, 2022|Categories: Uncategorized|2 Comments

Happy 4th Birthday Camp Jojo

Four years ago, 3rd August 2018, we launched the first accessible camp at Ivy Farm. Tim (the husband) and I, Rachel, had dreamed of creating a place where family holidays with children who have complex needs could be a restful and fun for the whole family. We know our own family holidays are normally harder work than being at home. [...]

By |August 3rd, 2022|Categories: Uncategorized|0 Comments

MDTs or pre-schoolers in a sandpit?

Too many multidisciplinary teams (MDTs) work like a group of toddlers in a pre-school. Bear with me on this one. I’m not suggesting they aren’t fully toilet trained or have tantrums (although that isn’t entirely unheard of) but rather that their social interactions aren’t fully developed. Young children might think they have played with their friend because they have [...]

By |July 29th, 2022|Categories: Uncategorized|0 Comments

Hospitals: Panorama and Particulars

There is a panoramic view of any hospital admission but step closer and the days are riddle with particular incidences creating a uniquely, stomach churning rollercoaster. Our time in hospital has highlighted it this week. Messages went out saying, “He’s getting better” “Doing well” “It’s been a success” These statements are all true. They are honest, broad strokes of the [...]

By |June 22nd, 2022|Categories: Uncategorized|1 Comment


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