Blog
Through the blog, Rachel’s Memoir The Skies I’m Under and The Skies We’re Under podcast we share the stories of fellow parents so we can all feel a little less alone and little more understood.
Click the icon to the left to access a page of useful resources that we have compiled over the years.
Losing control
Ever feel like you are losing control? One of the first things to disappear when becoming the parent of a child with complex needs, is a sense of control. Some people live deluded that they are the masters of their own destiny, but for parents of someone with disabilities, the weeks ahead are shaped by a growing list of [...]
Dear Professionals … GalleryDear Professionals …
#bridgingthegap, Born at the Right Time Training, co-production, communication, Don't call me Mum, effective communication, Inspiring, mum of child with disability, parenting, parenting a child with disabilties, special needs, Thank you, Uncategorized
Dear Professionals …
I’m not sure where to start because there are so many of you who have the opportunity to deliver personalised care. Maybe you’re one of the many therapists (Occupational Therapist, Physiotherapist, Speech And Language Therapist to name but a few) who collude and agree when it’s best to meet and then ask that I adhere to 'your' agreed date [...]
“Don’t Call Me Mum” a Key Performance Indicator (KPI) for Personalised Care
Personalised care is to be business as usual from 2024 but is the centralised drive for change really capturing the cultural shift required? When there is still debate amongst practitioners about the challenges of using a parent’s name, how can the wider-reaching scope of personalised care be expected to be embedded? The hallmark of [...]
Children in Need … or Children we’re Failing?
November. It’s that time of year again when Pudsey is dusting off his eye patch and schools around the country are asking children to come in wearing spots (because we all have spotty clothes in our cupboards) to raise money for Children in Need. What could possibly be wrong with supporting children who are [...]
It’s not fair …
I recently had a conversation with a head of SEN services in a local authority working incredibly hard to stretch scarce school placements for children with SEN. In the middle of our conversation, he explained how it simply isn’t fair for him to allocate resources based on who shouts the loudest. Rather, he has a duty to allocate based [...]
Camping with a disabled child
Before having children, holidays often consisted of lazy pub lunches, afternoon naps, late nights and spontaneous decisions. After children – well, I guess we all acknowledge, it is a ‘bit different’. When you have a child with additional needs though, just going outside the front door for a couple of hours can take an operation of military precision and preparation. [...]