Hospitals: Panorama and Particulars

There is a panoramic view of any hospital admission but step closer and the days are riddle with particular incidences creating a uniquely, stomach churning rollercoaster. Our time in hospital has highlighted it this week. Messages went out saying, “He’s getting better” “Doing well” “It’s been a success” These statements are all true. They are honest, broad strokes of the [...]

By |June 22nd, 2022|Categories: Uncategorized|1 Comment

Don’t call me Mum Initiative

Only a few people in this world call me Mum, and to everyone else I request that they, "Please don't call me mum." I have a few pet hates. They include; Hardened Weetabix that needs a chisel to remove it from the bowl. Finding my laundry mottled with disintegrated tissue. Someone parking so close to my wheelchair-adapted car that I [...]

By |June 21st, 2022|Categories: Don't call me Mum, Parents as partners|0 Comments

#Carersweek 2022

The day of a carer … When I talk to others about the complexities and challenges of caring, it can all to easily feel like I'm being unfaithful. But often it isn’t the actual doing things for my son that’s exhausting - it’s the hoops and hurdles, the policies and funding panels. In short, it’s the lack of coordinated service [...]

By |June 10th, 2022|Categories: Uncategorized|0 Comments

The scrutiny and mutiny of blended diets

Last year, I shared our mutiny at rejecting processed milk and deciding to finally try blended diet for our son. Sadly, the level of scrutiny we were exposed to did not match the risks posed. We weren’t supported by our local team at the time of this decision and felt the need to justify and explain ourselves. We were asked [...]

By |February 3rd, 2022|Categories: Uncategorized|3 Comments

Blended diets – the benefits

I avoided doing a blended diet for my son for years. I sat on a Facebook group stalking and listening. If I’m honest, my medically tinted spectacles probably tipped me towards thinking it was a bit hippy. The irony that feeding your child actual food could be deemed ‘alternative’ didn't quite seeped in as being as ridiculous as it [...]

By |November 24th, 2021|Categories: Uncategorized|0 Comments


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