5 reasons why my son has a DNAR

By |2023-05-02T18:03:24+01:00March 19th, 2021|Categories: #bridgingthegap, acceptance, communication, disability, DNAR, effective communication, Learning disability, parenting a child with disabilties|

It is reported in the BBC news yesterday (18th March 2021) that over the past year the CQC has identified 508 “Do not attempt resuscitation” (DNAR) orders which were inappropriately put in place without discussion with the person or family involved. There is evidence to suggest this is happening more frequently for people who have learning [...]

The truth will set you free?

By |2018-10-16T09:40:16+01:00September 19th, 2018|Categories: acceptance, The skies I'm under, Truth, Uncategorized|

The glare of the theatre lights warmed my skin yet my body shook. The cesarean section was about to start. Everyone was poised, ready to carry out their designated duties yet I felt inadequate and out of my depth. I’d been in this environment before but this was different. Suddenly I wasn’t a face amongst [...]

Living on the Edge: My life as a parent

By |2017-10-20T21:27:50+01:00February 8th, 2017|Categories: acceptance, cerebral palsy, complications, disability, exhaustion, family, living on the edge, Mother of child with special needs, mum of child with disability, Uncategorized|

Is it just me? Or does anyone else feel like they are desperately trying to keep their house in order whilst stopping themselves from falling over the edge? I’ve always enjoyed living life a little on the edge. I love travelling and feeling like the foreigner. I’ve even been known to eat something that is a day [...]

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Living with Wounds like Mater the Tow-Truck…

By |2017-06-15T10:50:23+01:00August 13th, 2014|Categories: acceptance, Uncategorized, wounds|Tags: |

There have been occasions when it has felt as though every time I picked up my youngest son from school he stumbled out of class clutching a piece of paper. A sticker on his chest brazenly claimed, "Today I bumped my head". I'm then given all the gory details of how his most recent injury occurred. J [...]

5 Secrets to Living Beyond Blame

By |2021-01-29T15:53:20+00:00June 12th, 2014|Categories: acceptance, cerebral palsy, compensation, legal action, mum of child with disability|Tags: |

In parenting workshops I often consider how I have needed to learn the secrets of living beyond blame when my life was suddenly defined by the consequences of a decision I made. My Story Years ago, I woke in the middle of the night with a niggling sense of uncertainty. Unable to settle I slunk out [...]

Loving the skies I’m under

By |2017-06-15T09:49:22+01:00February 21st, 2014|Categories: acceptance, cerebral palsy, chance, disability, parenting, risk, special needs, what if|

In 1985 Marty McFly hit the big screen for the first time. Back to the Future was epic, with its DeLorean time travel machine, flux capacitor and crazy Doc screeching, "1.21 Gigawatts!". Marty finds himself in 1955 and has to get back to the future whilst ensuring his parents still fall in love.The whole concept of [...]

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