#bridgingthegap

/#bridgingthegap

5 reasons why my son has a DNAR

By |2021-03-19T11:46:41+00:00March 19th, 2021|Categories: #bridgingthegap, acceptance, communication, disability, DNAR, effective communication, Learning disability, parenting a child with disabilties|

It is reported in the BBC news yesterday (18th March 2021) that over the past year the CQC has identified 508 “Do not attempt resuscitation” (DNAR) orders which were inappropriately put in place without discussion with the person or family involved. There is evidence to suggest this is happening more frequently for people who have learning [...]

Keeping the peace

By |2021-03-11T19:43:46+00:00March 11th, 2021|Categories: #bridgingthegap, effective communication, peace, perspective, royals, Uncategorized|

There has been a lot of talk about Harry and Megan this week. Polarising, hot-headed opinions including the passionate view point that being entirely uninterested is the only right reaction. It has made me wonder what it looks like to, "keep the peace" and whether attempts to keep the peace can result in perpetuating injustice and [...]

Leaving lockdown

By |2020-06-19T17:46:14+00:00June 19th, 2020|Categories: #bridgingthegap, Born at the Right Time Training, communication, covid-19, education|Tags: , , , , , , , |

If you had told me six months ago that any of the support we relied was going to be taken away from us as a family (until further notice), I would have considered locking myself in my bedroom. Ask me to home school ANY of my children = tears (there is a reason I am [...]

Reimagine a new way.

By |2020-12-11T15:24:18+00:00June 10th, 2020|Categories: #bridgingthegap, training|Tags: , , , , , , , , , , , |

The world is reeling. It has been shaken to the core. The rhythm of our lives is untethered. Christmas won't be the same. New year celebrations won't be the same and all of us are clinging to the hope of a vaccine. Our values, way of life and priorities have been challenged. For parents who have [...]

Lockdown: Caring isn’t cancelled

By |2020-04-16T12:27:00+00:00April 16th, 2020|Categories: #bridgingthegap, Carers, community, disability, family, Lockdown, Uncategorized|

Medications 7 times through the day and night isn't cancelled. 24-hour PEG feeds aren't cancelled. Hoisting and toileting isn't cancelled. 24-hour postural care isn’t cancelled. Personal care isn't cancelled. Cooking, cleaning, educating, playing, resting isn’t cancelled. Contacting and negotiating with professionals isn’t cancelled. Visual stimulation, sensory stimulation and active movements aren’t cancelled Trying to keep your [...]

Behind closed doors

By |2020-02-05T19:26:37+00:00February 5th, 2020|Categories: #bridgingthegap, Born at the Right Time Training, communication, effective communication, training|Tags: , , , |

There is more to me than you can see. I don’t show my vulnerabilities because that is not how it should be. But when I dare to look into your eyes, I know you are a lot like me.   I wake in the night, worrying about what more I should do, but you only get to [...]

Island life and bridging the gap

By |2019-07-16T11:58:35+00:00July 12th, 2019|Categories: #bridgingthegap, communication, community, expectations, Island living|

Being the parent to child with complex disabilities is like living on an island. The surrounding people each reside on their own islands which on the surface appear similar but feel worlds apart. To others, my island looked just like theirs, but I knew it was so very different. Although the other islands were not too [...]