Doors and Whitewashed walls

By |2017-06-15T11:25:39+01:00January 29th, 2015|Categories: cerebral palsy, epilepsy, family, mum of child with disability, parenting, priorities|

This week I stepped in the door of a local Rotary club meeting and received a warm welcome. My husband sorted the kids for school while I sat down, ate breakfast and pretended to be a grown up for a couple of hours. The people I met were really friendly and they listened intently to my story [...]


By |2017-06-15T10:05:39+01:00March 14th, 2014|Categories: cerebral palsy, CTG, disability, EEG, epilepsy, seizures, sleeping trace|

At a recent admission to Great Ormond Street Hospital (GOSH) I sat in our small side room gazing through the dim light at blue and red lines dancing across a large screen. My son had been admitted for a prolonged EEG, to investigate his epilepsy. Having pressed a button to indicate he was now sleeping, I [...]


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