Empowerment: the fallacy of a system which doesn’t listen

By |2023-11-28T14:01:45+00:00November 28th, 2023|Categories: assessment, Carers, disability, family, Learning disability, Mother of child with special needs, mum of child with disability, parenting, parenting a child with disabilties, Parents as partners, special needs|

As a qualified nurse, wife of a GP and the parent of a young man with complex disabilities, I sometimes feel as though I’m being fed the line of empowerment whilst being thrust into a system which doesn’t listen. Sometimes I wonder if, as a parent carer, I am a lot like Cassandra.  Cassandra, a [...]

5 reasons why my son has a DNAR

By |2023-05-02T18:03:24+01:00March 19th, 2021|Categories: #bridgingthegap, acceptance, communication, disability, DNAR, effective communication, Learning disability, parenting a child with disabilties|

It is reported in the BBC news yesterday (18th March 2021) that over the past year the CQC has identified 508 “Do not attempt resuscitation” (DNAR) orders which were inappropriately put in place without discussion with the person or family involved. There is evidence to suggest this is happening more frequently for people who have learning [...]

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