Losing control

By |2023-06-20T11:19:25+01:00June 20th, 2023|Categories: communication, education, mind the gap, mum of child with disability, Parents as partners, Simple Stuff Works, Uncategorized|

Ever feel like you are losing control? One of the first things to disappear when becoming the parent of a child with complex needs, is a sense of control. Some people live deluded that they are the masters of their own destiny, but for parents of someone with disabilities, the weeks ahead are shaped by [...]

Don’t call me Mum Initiative

By |2022-06-21T20:17:54+01:00June 21st, 2022|Categories: Don't call me Mum, Parents as partners|

Only a few people in this world call me Mum, and to everyone else I request that they, "Please don't call me mum." I have a few pet hates. They include; Hardened Weetabix that needs a chisel to remove it from the bowl. Finding my laundry mottled with disintegrated tissue. Someone parking so close to my [...]

Losing control

By |2019-01-16T19:11:24+00:00January 16th, 2019|Categories: communication, education, mind the gap, mum of child with disability, Parents as partners, Simple Stuff Works, Uncategorized|

Ever feel like you are losing control? One of the first things to disappear, when I became the parent of a child with complex needs, was a sense of control. Once I foolishly thought I was the master of your own destiny. Suddenly, the weeks ahead of me were moulded and shaped by a growing [...]

5 little things that make a Big Difference

By |2021-01-29T17:11:32+00:00February 8th, 2017|Categories: cerebral palsy, Don't call me Mum, featured, mum of child with disability, parenting, Parents as partners, Uncategorized|

When I worked as a  nurse in A&E, I knew that even in the middle of emergency procedures, how I treated the patient and family would be remembered. As a parent standing over my fitting son while the doctors fought to stop an hour long seizure, this simple fact went from theory to reality. As a healthcare professional [...]

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Don’t call me Mum Initiative

By |2020-06-20T08:20:05+01:00November 7th, 2016|Categories: Don't call me Mum, Parents as partners|

Only a few people in this world call me Mum, and to everyone else I ask, "Please don't call me mum." I have a few pet hates. They include; Hardened weetabix that needs a chisel to remove Finding my laundry mottled with disintegrated tissue Someone parking so close to my wheelchair adapted car that I can’t [...]

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