Respite

/Respite

We cannot be measured

By | 2019-03-07T08:05:54+00:00 March 5th, 2019|Categories: assessment, communication, disability, mum of child with disability, Respite|

An open letter. I respect you. I really do. You obviously care and have years of experience. You haven't had a personality transplant to take this job. You want to help people, to help families like mine. You are in such a difficult position. You're the face of the bureaucrats. The ones who get to say [...]

“Please, Sir, I want some more.”

By | 2018-01-27T07:22:32+00:00 September 13th, 2017|Categories: Help, Respite, Thriving not surviving|

I was lying in bed this week and the image of Oliver floated into my head. I was debating with myself whether I dare ask for an increased care package for my son. “Please, sir, I want some more…” It's an iconic line from classic novel that has been retold to generations. I confess, I've [...]