Dear Professionals…

By |2021-01-29T15:12:10+00:00October 7th, 2018|Categories: Born at the Right Time Training, co-production, communication, effective communication, Inspiring, mum of child with disability, parenting, parenting a child with disabilties, special needs, Uncategorized|

I’m not sure where to start because there are so many of you. Maybe you’re one of the many therapists (OT, PT, SALT) who collude and agree when it’s best to meet and then ask I adhere to your agreed date and time. Please know, I’m grateful for your input, skills and knowledge. I know [...]

The 12 Days of a complex Christmas – a parody for complex families (originally posted 2016)

By |2022-12-19T13:02:01+00:00December 9th, 2016|Categories: 12 days of Christmas, Advantages, Christmas, mum of child with disability, special needs, Thank you|

Shakin’ Stevens and Slade are unashamedly blaring out from music systems around the country. The usual suspects have decked their National Lampoon homes with sufficient lights to be seen from space. ‘Miracle of 34th Street’ and ‘It’s a Wonderful Life’ are scheduled on a loop over the next couple of weeks.   You’ve seen the Coca Cola ad, the [...]

A nine-year-old’s open letter…

By |2023-05-18T14:47:39+01:00July 7th, 2016|Categories: cerebral palsy, cherishing today, disability, family, sibling, special needs, special needs sibling, Uncategorized|

"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."

Selfies – everyday moment, forever memory

By |2017-06-15T11:54:46+01:00May 25th, 2016|Categories: book, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, selfies, special needs, The skies I'm under, Uncategorized|

There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.

Top 6 Disability Hacks

By |2018-02-15T11:30:54+00:00May 6th, 2016|Categories: cerebral palsy, disability, featured, hack, mum of child with disability, special needs, Uncategorized, wheelchair|

Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]

Top 11 Advantages to Parenting a Disabled Child

By |2022-07-26T14:23:02+01:00January 8th, 2016|Categories: cerebral palsy, disability, featured, Mother of child with special needs, mum, mum of child with disability, parenting, special needs, The skies I'm under|

Parenting a disabled child gets a bad press, so here is my Top 11 advantages to parenting a disabled child but there are many more.

Birthday or Anniversary

By |2021-10-11T13:33:44+01:00October 12th, 2015|Categories: anniversary, birthday, cerebral palsy, disability, family, Mother of child with special needs, mum, mum of child with disability, parenting, special needs|

12th October 2005 was S's birth day and my defining moment. 10 years ago today I had one of the toughest days of my life. My world was turned upside down and I became a mum. Motherhood is a magnifying glass. It amplifies your emotions, your strengths, your weaknesses and your LOVE. When you watch your [...]

Surviving Stranger Sympathy: A guide to Parents of a Disabled Child

By |2022-07-13T09:35:48+01:00September 19th, 2014|Categories: cerebral palsy, expectations, mum of child with disability, special needs|

The other day I was in our local supermarket when a stranger stopped her work, looked sympathetically between me and my son and sighed 'Aaaaaah!', as though slightly disappointed. Having read many blogs and articles I know this experience is not unique. It seems many parents become indignant and frustrated, wanting to correct  the stranger with [...]

Letting in the Light

By |2018-04-04T16:55:53+01:00April 11th, 2014|Categories: cerebral palsy, exhaustion, Fatigue, mum, parenting, special needs, value, Walk in my footsteps|

"You have not walked in my footsteps, danced in my shoes, or lived in my world. Do not judge me, point your fingers at me, or become experts on my life." Kate Baker I have a warm memory of dancing on my dad's feet as a little girl. I would place my tiptoes on his shiny [...]

Top 10 Advantages to Parenting a Disabled Child

By |2017-11-07T15:37:31+00:00March 10th, 2014|Categories: Advantages, cerebral palsy, disability, special needs, Top 10|

As well as trials there are many advantages to loving and parenting a child with severe and complex disabilities. Here are my Top 10 Advantages. 1) Disabled Bays No more aimlessly driving around a crowded car-park. With your precious Blue Badge you get to park in Disabled bays, assuming some unworthy driver hasn't already nabbed it. If all else fails there's always forbidden [...]

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