Empowerment: the fallacy of a system which doesn’t listen

By |2023-11-28T14:01:45+00:00November 28th, 2023|Categories: assessment, Carers, disability, family, Learning disability, Mother of child with special needs, mum of child with disability, parenting, parenting a child with disabilties, Parents as partners, special needs|

As a qualified nurse, wife of a GP and the parent of a young man with complex disabilities, I sometimes feel as though I’m being fed the line of empowerment whilst being thrust into a system which doesn’t listen. Sometimes I wonder if, as a parent carer, I am a lot like Cassandra.  Cassandra, a [...]

I’m too busy …

By |2023-11-27T14:33:59+00:00June 29th, 2023|Categories: #bridgingthegap, cerebral palsy, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, special needs|

In promoting the 'Don't call me Mum' initiative and asking practitioners to #CallMe, I often hear the excuse that a hospital professional is simply too busy. It is easy in the bustle of the hospital ward to mistakenly regard the details as unimportant. Like the panoramic view of any hospital stay might include the admission [...]

Dear Professionals …

By |2023-06-06T09:22:41+01:00June 6th, 2023|Categories: #bridgingthegap, Born at the Right Time Training, co-production, communication, Don't call me Mum, effective communication, Inspiring, mum of child with disability, parenting, parenting a child with disabilties, special needs, Thank you, Uncategorized|Tags: , , , , , , , , , |

I’m not sure where to start because there are so many of you who have the opportunity to deliver personalised care. Maybe you’re one of the many therapists (Occupational Therapist, Physiotherapist, Speech And Language Therapist to name but a few) who collude and agree when it’s best to meet and then ask that I adhere [...]

Dear Professionals…

By |2021-01-29T15:12:10+00:00October 7th, 2018|Categories: Born at the Right Time Training, co-production, communication, effective communication, Inspiring, mum of child with disability, parenting, parenting a child with disabilties, special needs, Uncategorized|

I’m not sure where to start because there are so many of you. Maybe you’re one of the many therapists (OT, PT, SALT) who collude and agree when it’s best to meet and then ask I adhere to your agreed date and time. Please know, I’m grateful for your input, skills and knowledge. I know [...]

The 12 Days of a complex Christmas – a parody for complex families (originally posted 2016)

By |2022-12-19T13:02:01+00:00December 9th, 2016|Categories: 12 days of Christmas, Advantages, Christmas, mum of child with disability, special needs, Thank you|

Shakin’ Stevens and Slade are unashamedly blaring out from music systems around the country. The usual suspects have decked their National Lampoon homes with sufficient lights to be seen from space. ‘Miracle of 34th Street’ and ‘It’s a Wonderful Life’ are scheduled on a loop over the next couple of weeks.   You’ve seen the Coca Cola ad, the [...]

A nine-year-old’s open letter…

By |2023-05-18T14:47:39+01:00July 7th, 2016|Categories: cerebral palsy, cherishing today, disability, family, sibling, special needs, special needs sibling, Uncategorized|

"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."

Selfies – everyday moment, forever memory

By |2017-06-15T11:54:46+01:00May 25th, 2016|Categories: book, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, selfies, special needs, The skies I'm under, Uncategorized|

There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.

Top 6 Disability Hacks

By |2018-02-15T11:30:54+00:00May 6th, 2016|Categories: cerebral palsy, disability, featured, hack, mum of child with disability, special needs, Uncategorized, wheelchair|

Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]

Top 11 Advantages to Parenting a Disabled Child

By |2022-07-26T14:23:02+01:00January 8th, 2016|Categories: cerebral palsy, disability, featured, Mother of child with special needs, mum, mum of child with disability, parenting, special needs, The skies I'm under|

Parenting a disabled child gets a bad press, so here is my Top 11 advantages to parenting a disabled child but there are many more.

Birthday or Anniversary

By |2021-10-11T13:33:44+01:00October 12th, 2015|Categories: anniversary, birthday, cerebral palsy, disability, family, Mother of child with special needs, mum, mum of child with disability, parenting, special needs|

12th October 2005 was S's birth day and my defining moment. 10 years ago today I had one of the toughest days of my life. My world was turned upside down and I became a mum. Motherhood is a magnifying glass. It amplifies your emotions, your strengths, your weaknesses and your LOVE. When you watch your [...]

Title

Go to Top