I’m not sure where to start because there are so many of you. Maybe you’re one of the many therapists (OT, PT, SALT) who collude and agree when it’s best to meet and then ask I adhere to your agreed date and time. Please know, I’m grateful for your input, skills and knowledge. I know [...]
Shakin’ Stevens and Slade are unashamedly blaring out from music systems around the country. The usual suspects have decked their National Lampoon homes with sufficient lights to be seen from space. ‘Miracle of 34th Street’ and ‘It’s a Wonderful Life’ are scheduled on a loop over the next couple of weeks. You’ve seen the Coca Cola ad, the [...]
"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."
There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.
Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]
Parenting a disabled child gets a bad press, so here is my Top 11 advantages to parenting a disabled child but there are many more.
12th October 2005 was S's birth day and my defining moment. 10 years ago today I had one of the toughest days of my life. My world was turned upside down and I became a mum. Motherhood is a magnifying glass. It amplifies your emotions, your strengths, your weaknesses and your LOVE. When you watch your [...]
The other day I was in our local supermarket when a stranger stopped her work, looked sympathetically between me and my son and sighed 'Aaaaaah!', as though slightly disappointed. Having read many blogs and articles I know this experience is not unique. It seems many parents become indignant and frustrated, wanting to correct the stranger with [...]
"You have not walked in my footsteps, danced in my shoes, or lived in my world. Do not judge me, point your fingers at me, or become experts on my life." Kate Baker I have a warm memory of dancing on my dad's feet as a little girl. I would place my tiptoes on his shiny [...]
As well as trials there are many advantages to loving and parenting a child with severe and complex disabilities. Here are my Top 10 Advantages. 1) Disabled Bays No more aimlessly driving around a crowded car-park. With your precious Blue Badge you get to park in Disabled bays, assuming some unworthy driver hasn't already nabbed it. If all else fails there's always forbidden [...]
