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Flattening the curve…of emotions.

By |2021-06-22T10:15:39+00:00June 22nd, 2021|Categories: #bridgingthegap, emotions, hope, joy, loss, peace, perspective, Uncategorized|

Have you ever tried to curate your expectations in order to minimise disappointment or sadness? As though you are trying to flatten the curve of your emotions by not letting yourself feel the high of hopefulness or joyful expectation. I have found myself attempting (and failing) to compress and ignore feelings of hope, excitement, love or [...]

With not to…

By |2021-06-09T13:13:49+00:00June 9th, 2021|Categories: #bridgingthegap, Born at the Right Time Training, co-production, communication, Uncategorized|

An upside down world In the last year, the country has been turned on its head. Things which were once important are no longer a priority. People's values have been honed, the world has shrunk, and everyone has gotten used to living in a different way. Whether it is wearing a face mask to pop [...]

Keeping the peace

By |2021-03-11T19:43:46+00:00March 11th, 2021|Categories: #bridgingthegap, effective communication, peace, perspective, royals, Uncategorized|

There has been a lot of talk about Harry and Megan this week. Polarising, hot-headed opinions including the passionate view point that being entirely uninterested is the only right reaction. It has made me wonder what it looks like to, "keep the peace" and whether attempts to keep the peace can result in perpetuating injustice and [...]

Why I am PROUD of my son’s attendance award.

By |2020-07-17T17:50:13+00:00July 17th, 2020|Categories: Uncategorized|

“Why my son won’t be accepting his 100% attendance award” went viral 4 years ago. The photo of one 9-year-old‘s left ear went round the world and was seen by millions of people - along with my rant about how much I dislike 100% Attendance Awards and how, in my opinion, they undervalue community and [...]

“This is Bob, he has piles.”

By |2021-01-12T19:08:24+00:00July 9th, 2020|Categories: Uncategorized|

Ever been at a work’s do and introduced a colleague by listing off their current ailments? “Hi, Steve, this is Bob. He has a stammer. Bob, meet Steve, he’s can’t sit for long because of his massive piles.” Of course not. I don’t introduce myself as, “Hi, I’m Rachel. I broke my wrist last year, ruptured [...]

Lockdown: Caring isn’t cancelled

By |2020-04-16T12:27:00+00:00April 16th, 2020|Categories: #bridgingthegap, Carers, community, disability, family, Lockdown, Uncategorized|

Medications 7 times through the day and night isn't cancelled. 24-hour PEG feeds aren't cancelled. Hoisting and toileting isn't cancelled. 24-hour postural care isn’t cancelled. Personal care isn't cancelled. Cooking, cleaning, educating, playing, resting isn’t cancelled. Contacting and negotiating with professionals isn’t cancelled. Visual stimulation, sensory stimulation and active movements aren’t cancelled Trying to keep your [...]

Losing control

By |2019-01-16T19:11:24+00:00January 16th, 2019|Categories: communication, education, mind the gap, mum of child with disability, Parents as partners, Simple Stuff Works, Uncategorized|

Ever feel like you are losing control? One of the first things to disappear, when I became the parent of a child with complex needs, was a sense of control. Once I foolishly thought I was the master of your own destiny. Suddenly, the weeks ahead of me were moulded and shaped by a growing [...]

Dear Professionals…

By |2021-01-29T15:12:10+00:00October 7th, 2018|Categories: Born at the Right Time Training, co-production, communication, effective communication, Inspiring, mum of child with disability, parenting, parenting a child with disabilties, special needs, Uncategorized|

I’m not sure where to start because there are so many of you. Maybe you’re one of the many therapists (OT, PT, SALT) who collude and agree when it’s best to meet and then ask I adhere to your agreed date and time. Please know, I’m grateful for your input, skills and knowledge. I know [...]

The truth will set you free?

By |2018-10-16T09:40:16+00:00September 19th, 2018|Categories: acceptance, The skies I'm under, Truth, Uncategorized|

The glare of the theatre lights warmed my skin yet my body shook. The cesarean section was about to start. Everyone was poised, ready to carry out their designated duties yet I felt inadequate and out of my depth. I’d been in this environment before but this was different. Suddenly I wasn’t a face amongst [...]

I’m so not inspirational, but I know people who are.

By |2018-03-24T21:26:53+00:00March 23rd, 2018|Categories: Uncategorized|

In our family, we have sorry rules. Sounds up tight, I know, but wanted 'sorry' to be meaningful and helpful, not flippant and reactive. Sorry was being said too easily without thought and was quickly becoming meaningless. The sorry rules are simple and I stole them from Cuppacocoa parenting blog about A better way to say [...]