I’ve always been a talker and strongly believe in the power of story-telling. Being real and honest about the joys and challenges for parenting a child with complex disabilities can have a profound impact.
For policy makers, it is essential they understand the impact of their work.
For charities and commissioners, it is important they recognise the families they support.
For practitioners, it is vital they hear the heart of the story behind the jargon.
For parents, it is simply good to feel a little less alone.
For everyone else, understanding a little of what happens behind closed doors stimulates kindness, understanding and a little more acceptance.
I have shared some of our story on the radio and at a variety of events.
In 2017 my contribution at the National PMLD Conference was very well received and caused practitioners to review their practice. I have been interviewed for a Parenting Magazine, Radio 5 live investigates and local radio.
In November 2017 I sat alongside Amanda Batten CEO of Contact: for families with disabled children at the Houses of Parliament and gave a parents perspective at the Disabled Children’s Partnership Campaign Manifesto launch.
I am passionate about using our story to shape policies, inform practitioners, improve services and connect with families.
My faith is also a part of my story, have contributed to church events and lead seminars with CWR.