I’ve always been a talker and strongly believe in the power of story-telling. Being real and honest about the joys and challenges for parenting a child with complex disabilities can have a profound impact.
For policy makers, it is essential they understand the impact of their work.
For charities and commissioners, it is important they recognise the families they support.
For practitioners, it is vital they hear the heart of the story behind the jargon.
For parents, it is simply good to feel a little less alone.
For everyone else, understanding a little of what happens behind closed doors stimulates kindness, understanding and a little more acceptance.
I have shared some of our story on the radio, TV (TBN) and at a variety of events. I work with business, charities, universities, churches and local support groups.
My speaking engagements include Parliament, alongside Amanda Batten CEO of Contact: for families with disabled children at the Disabled Children’s Partnership Campaign Manifesto launch, International events (such as the European Seating Symposium 2018), several conferences (both Professional focused – National PMLD conference and Christian – New Wine), local faith gatherings and events supporting parents of children with disabilities.
I am passionate about using our story to shape policies, inform practitioners, improve services and connect with families.
My faith is also a part of my story and I have contributed to church events and lead seminars with CWR and New Wine.