I know today is nearly over but it's the first day of Children's Hospice week so I wanted to say something. Being allowed to stay at a Children's Hospice, is one of those things no-one wants to be eligible for. There are lots of these 'clubs', small groups of people that deep down we don't want to be [...]
Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]
At the beginning of 2015, I wrote a blog about New Years and IEPs (Individual Education Plan), but it was never published, until now. 'We celebrated this New Years Eve with our family cooking and sitting around a fire in the garden. New Years Day is a mark in the sand. It is a point [...]
The glare of the theatre lights warmed my skin as my body shivered. The cesarean section was about to begin. Everyone was poised, ready to carry out their designated duties yet I felt inadequate and out of my depth. I’d been in this environment before but this was different. This time, I wasn’t a face amongst [...]
I confess, I lied. It was a blatant, bold and brash falsification of the truth. I claimed to be enjoying myself... but I wasn't.
The debate about the ‘Down Syndrome Blood Test’ is raging. Unfortunately, I think a lot of it fails to question whether any blood test can accurately measure the value of a life.
Parenting a disabled child gets a bad press, so here is my Top 11 advantages to parenting a disabled child but there are many more.
