Weather warning! Birthday approaching

By |2021-10-11T13:38:39+01:00October 11th, 2021|Categories: #bridgingthegap, anniversary, birthday, Carers, disability, expectations, hope, mum of child with disability, Uncategorized|

It’s the 11th October 2021, there is a severe weather front closing in and I have written about it before. I’m braced for impact. It’s my son’s 16th birthday tomorrow I am full of so much joy, pride, gratitude and love. I am brimming with heartache, loss and grief. Weather fronts are the transition boundary [...]

Flattening the curve…of emotions.

By |2021-06-22T10:15:39+01:00June 22nd, 2021|Categories: #bridgingthegap, emotions, hope, joy, loss, peace, perspective, Uncategorized|

Have you ever tried to curate your expectations in order to minimise disappointment or sadness? As though you are trying to flatten the curve of your emotions by not letting yourself feel the high of hopefulness or joyful expectation. I have found myself attempting (and failing) to compress and ignore feelings of hope, excitement, love or [...]

The moment everything changes…

By |2023-12-20T09:19:56+00:00July 4th, 2017|Categories: disability, expectations, hope, mum of child with disability|Tags: , , |

A defining moment can happen anywhere, for us it came at ten weeks old, in the Hammersmith hospital in London. It was the line in the sand that once stepped over, there was no turning back. ‘When my son was in the scanner for longer than expected, a battle began in my mind. Was this a [...]

Down Syndrome Test – measuring the value of life

By |2017-10-31T08:54:28+00:00January 18th, 2016|Categories: Advantages, disability, Down Syndrome, family, hope, Mother of child with special needs, mum of child with disability, priorities, Uncategorized, value, worth|

The debate about the ‘Down Syndrome Blood Test’ is raging. Unfortunately, I think a lot of it fails to question whether any blood test can accurately measure the value of a life.

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