Blog
Through the blog, Rachel’s Memoir The Skies I’m Under and The Skies We’re Under podcast we share the stories of fellow parents so we can all feel a little less alone and little more understood.
Click the icon to the left to access a page of useful resources that we have compiled over the years.
Hospitals: Panorama and Particulars
There is a panoramic view of any hospital admission but step closer and the days are riddle with particular incidences creating a uniquely, stomach churning rollercoaster. Our time in hospital has highlighted it this week. Messages went out saying, “He’s getting better” “Doing well” “It’s been a success” These statements are all true. They are honest, broad strokes of the [...]
Don’t call me Mum Initiative
Only a few people in this world call me Mum, and to everyone else I request that they, "Please don't call me mum." I have a few pet hates. They include; Hardened Weetabix that needs a chisel to remove it from the bowl. Finding my laundry mottled with disintegrated tissue. Someone parking so close to my wheelchair-adapted car that I [...]
#Carersweek 2022
The day of a carer … When I talk to others about the complexities and challenges of caring, it can all to easily feel like I'm being unfaithful. But often it isn’t the actual doing things for my son that’s exhausting - it’s the hoops and hurdles, the policies and funding panels. In short, it’s the lack of coordinated service [...]
The scrutiny and mutiny of blended diets
Last year, I shared our mutiny at rejecting processed milk and deciding to finally try blended diet for our son. Sadly, the level of scrutiny we were exposed to did not match the risks posed. We weren’t supported by our local team at the time of this decision and felt the need to justify and explain ourselves. We were asked [...]
Blended diets – the benefits
I avoided doing a blended diet for my son for years. I sat on a Facebook group stalking and listening. If I’m honest, my medically tinted spectacles probably tipped me towards thinking it was a bit hippy. The irony that feeding your child actual food could be deemed ‘alternative’ didn't quite seeped in as being as ridiculous as it [...]
Children in Need, good or bad?
It’s Children in Need this week. Forgetting the cultural drive to be good or bad, right or wrong, I have to admit I have been increasingly uncomfortable with Children in Need (CIN) for the past few years. A perspective which has been voice by others in recent days across social media. So, stepping into the murky grey of real life, [...]