We cannot be measured

By |2019-03-07T08:05:54+00:00March 5th, 2019|Categories: assessment, communication, disability, mum of child with disability, Respite|

An open letter. I respect you. I really do. You obviously care and have years of experience. You haven't had a personality transplant to take this job. You want to help people, to help families like mine. You are in such a difficult position. You're the face of the bureaucrats. The ones who get to say [...]

Losing control

By |2024-06-10T11:37:40+01:00January 16th, 2019|Categories: communication, education, mind the gap, mum of child with disability, Parents as partners, Simple Stuff Works, Uncategorized|

Ever feel like you are losing control? One of the first things to disappear, when I became the parent of a child with complex needs, was a sense of control. Once I foolishly thought I was the master of your own destiny. Suddenly, the weeks ahead of me were moulded and shaped by a growing [...]

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