Children shouldn’t come first

By |2018-10-03T15:27:36+01:00October 3rd, 2018|Categories: exhaustion, family, Mother of child with special needs, parenting|

I’ve heard it said, that children come first. We say it in lots of different ways; ‘It's the kids that matter.’ ‘You need to do what’s best for the children.’ Although I am passionate about the rights of children and their well-being, in our family at least, children don't come first. I have come to see [...]

Good parent, bad emotions. #worldmentalhealthday

By |2017-11-03T14:54:56+00:00October 10th, 2017|Categories: emotions, exhaustion, Mother of child with special needs, mum of child with disability, Uncategorized, worldmentalhealthday|

“It’s just so hard, it's constant, not just physically but emotionally and mentally.” I muster every ounce of ‘I hear you’, with a simple nod. In slightly more frantic tones she continues, “it isn’t that it isn’t good, it is wonderful, she is deligh…” “Stop, you don’t need to explain.” Three times this week I [...]

A world of conflicted truth

By |2023-05-31T16:39:10+01:00May 17th, 2017|Categories: disability, exhaustion, expectations, Mother of child with special needs, mum of child with disability, Tearful, Truth|

The truth is my son is wonderful. It’s true our lives are good. It’s true I am lucky and blessed in so many ways. It is true he is precious and unique, loved and created. It’s true he fills our home with love and has taught us all how to be better humans. It is true that [...]

I’m not a Supermum…and that’s ok.

By |2018-06-04T09:42:09+01:00February 19th, 2017|Categories: disability, exhaustion, expectations, family, Mother of child with special needs, mum of child with disability, Simple Stuff Works|

For about three seconds in 2005 (the year I became a mum) I thought I could be a SuperMum. It didn’t last long. Unfortunately, I spent a few years trying to pretend to be a Supermum. Every morning I donned my Lycra suit and tried to trick everyone into thinking I’m Superwoman. Having a son with severe disabilities meant [...]

Living on the Edge: My life as a parent

By |2017-10-20T21:27:50+01:00February 8th, 2017|Categories: acceptance, cerebral palsy, complications, disability, exhaustion, family, living on the edge, Mother of child with special needs, mum of child with disability, Uncategorized|

Is it just me? Or does anyone else feel like they are desperately trying to keep their house in order whilst stopping themselves from falling over the edge? I’ve always enjoyed living life a little on the edge. I love travelling and feeling like the foreigner. I’ve even been known to eat something that is a day [...]

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Letting in the Light

By |2018-04-04T16:55:53+01:00April 11th, 2014|Categories: cerebral palsy, exhaustion, Fatigue, mum, parenting, special needs, value, Walk in my footsteps|

"You have not walked in my footsteps, danced in my shoes, or lived in my world. Do not judge me, point your fingers at me, or become experts on my life." Kate Baker I have a warm memory of dancing on my dad's feet as a little girl. I would place my tiptoes on his shiny [...]

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