Going Out in My Underwear

By |2017-06-15T11:32:31+01:00December 15th, 2015|Categories: book, cerebral palsy, Mother of child with special needs, mum of child with disability, parenting, The skies I'm under|

Have you ever dreamt that you walk into work and everyone is staring at you? At first you smile at the on-looking faces, then you begin to wonder why you're getting so much attention. Suddenly, your heart races as you anxiously look down to discover you aren’t wearing any trousers. Everyone is staring because you've stepped outside in your underwear.

Birthday or Anniversary

By |2021-10-11T13:33:44+01:00October 12th, 2015|Categories: anniversary, birthday, cerebral palsy, disability, family, Mother of child with special needs, mum, mum of child with disability, parenting, special needs|

12th October 2005 was S's birth day and my defining moment. 10 years ago today I had one of the toughest days of my life. My world was turned upside down and I became a mum. Motherhood is a magnifying glass. It amplifies your emotions, your strengths, your weaknesses and your LOVE. When you watch your [...]

Doors and Whitewashed walls

By |2017-06-15T11:25:39+01:00January 29th, 2015|Categories: cerebral palsy, epilepsy, family, mum of child with disability, parenting, priorities|

This week I stepped in the door of a local Rotary club meeting and received a warm welcome. My husband sorted the kids for school while I sat down, ate breakfast and pretended to be a grown up for a couple of hours. The people I met were really friendly and they listened intently to my story [...]

Hidden Miracles; lessons from the Nativity

By |2017-06-15T11:24:54+01:00December 20th, 2014|Categories: Christmas, disability, expectations, mum of child with disability, Uncategorized|

Nine years ago today I woke cloaked by darkness and breastfed my firstborn son. Within a couple of hours we bundled our infant into his pushchair and headed towards the train station. We began a journey of Truth with Hope travelling alongside. Sam had an appointment in London for an MRI scan of his brain. Our [...]

Why Christmas isn’t about Jesus…

By |2017-06-15T11:24:08+01:00December 18th, 2014|Categories: Christmas, mum, mum of child with disability, priorities, Uncategorized|Tags: , , , , |

Christmas isn't about Jesus for a lot of people. Long before Jesus came along, the Romans celebrated Saturnalia in the middle of December by exchanging gifts and partying. It was a good few centuries later that Christians hijacked this festival and joined in the merriment creating Christmas. I reckon that someone who doesn't think about God 364 days of the year has [...]

Surviving Stranger Sympathy: A guide to Parents of a Disabled Child

By |2022-07-13T09:35:48+01:00September 19th, 2014|Categories: cerebral palsy, expectations, mum of child with disability, special needs|

The other day I was in our local supermarket when a stranger stopped her work, looked sympathetically between me and my son and sighed 'Aaaaaah!', as though slightly disappointed. Having read many blogs and articles I know this experience is not unique. It seems many parents become indignant and frustrated, wanting to correct  the stranger with [...]

Washing Machines are like Families

By |2017-06-15T10:53:11+01:00September 11th, 2014|Categories: complications, disability, mum of child with disability, out of control|

I have had a couple of weeks of things breaking down. Break Down #1 - The Washing Machine The kids hadn't gone back to school yet and my washing machine decided the best way to clean our clothes was to boil them. I was merrily busying myself in the kitchen when I noticed heat emanating from the [...]

Moments of Summer

By |2024-07-23T15:33:17+01:00September 5th, 2014|Categories: disability, family, mum of child with disability, summer, travelling|

The school bell tolled at the end of term. With boxing gloves in each hand, I heard my coach shout over the furore of the crowd.  I was ready. The referee called us to the centre of the ring as I excitedly bounced on my tiptoes keen to begin. Finally, I lifted my head to see [...]

A-Z of Parenting a Disabled Child

By |2017-06-15T10:30:54+01:00June 20th, 2014|Categories: A-Z, mum of child with disability, parenting, Uncategorized|

For me becoming a parent has involved changes, insights and rewards. Here's my A-Z of Parenting a son living with complex disabilities and life-limiting epilepsy. A is for Adaptations including changing routine, adapting clothing, moving to a bungalow or adjusting my dreams; one thing is true, I had to adapt. B Body building Arnold Schwarzenegger watch out! My [...]

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