mum of child with disability

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Doors and Whitewashed walls

By |2017-06-15T11:25:39+00:00January 29th, 2015|Categories: cerebral palsy, epilepsy, family, mum of child with disability, parenting, priorities|

This week I stepped in the door of a local Rotary club meeting and received a warm welcome. My husband sorted the kids for school while I sat down, ate breakfast and pretended to be a grown up for a couple of hours. The people I met were really friendly and they listened intently to my story [...]

Hidden Miracles; lessons from the Nativity

By |2017-06-15T11:24:54+00:00December 20th, 2014|Categories: Christmas, disability, expectations, mum of child with disability, Uncategorized|

Nine years ago today I woke cloaked by darkness and breastfed my firstborn son. Within a couple of hours we bundled our infant into his pushchair and headed towards the train station. We began a journey of Truth with Hope travelling alongside. Sam had an appointment in London for an MRI scan of his brain. Our [...]

Why Christmas isn’t about Jesus…

By |2017-06-15T11:24:08+00:00December 18th, 2014|Categories: Christmas, mum, mum of child with disability, priorities, Uncategorized|Tags: , , , , |

Christmas isn't about Jesus for a lot of people. Long before Jesus came along, the Romans celebrated Saturnalia in the middle of December by exchanging gifts and partying. It was a good few centuries later that Christians hijacked this festival and joined in the merriment creating Christmas. I reckon that someone who doesn't think about God 364 days of the year has [...]

Surviving Stranger Sympathy: A guide to Parents of a Disabled Child

By |2017-06-15T10:58:48+00:00September 19th, 2014|Categories: cerebral palsy, expectations, mum of child with disability, special needs|

The other day I was in our local supermarket when a Stranger stopped her work, looked sympathetically between me and Sam and sighed 'Aaaaaah!', as though slightly disappointed. Having read many blogs and articles I know this experience is not unique. It seems many parents become indignant and frustrated, wanting to correct  the stranger with explanations [...]

Washing Machines are like Families

By |2017-06-15T10:53:11+00:00September 11th, 2014|Categories: complications, disability, mum of child with disability, out of control|

I have had a couple of weeks of things breaking down. Break Down #1 - The Washing Machine The kids hadn't gone back to school yet and my washing machine decided the best way to clean our clothes was to boil them. I was merrily busying myself in the kitchen when I noticed heat emanating from the [...]

Moments of Summer

By |2017-07-10T21:27:48+00:00September 5th, 2014|Categories: disability, family, mum of child with disability, summer, travelling|

The school bell tolled at the end of term. With boxing gloves in each hand, I heard my coach shout over the furore of the crowd.  I was ready. The referee called us to the centre of the ring as I excitedly bounced on my tiptoes keen to begin. Finally, I lifted my head to see [...]

A-Z of Parenting a Disabled Child

By |2017-06-15T10:30:54+00:00June 20th, 2014|Categories: A-Z, mum of child with disability, parenting, Uncategorized|

For me becoming a parent has involved changes, insights and rewards. Here's my A-Z of Parenting a son living with complex disabilities and life-limiting epilepsy. A is for Adaptations including changing routine, adapting clothing, moving to a bungalow or adjusting my dreams; one thing is true, I had to adapt. B Body building Arnold Schwarzenegger watch out! My [...]

6 Secrets to Living Beyond Blame

By |2017-06-15T10:16:53+00:00June 12th, 2014|Categories: acceptance, cerebral palsy, compensation, legal action, mum of child with disability|Tags: |

I needed to learn the secrets of living beyond blame when my life was suddenly defined by the consequences of a decision I made. My Story Eight and a half years ago I woke in the middle of the night with a niggling sense of uncertainty. Unable to settle I slunk out of bed and sat in a dark, [...]

A letter to my younger self

By |2017-06-15T10:15:03+00:00June 6th, 2014|Categories: Letter to myself ten years ago, mum of child with disability, What advice would I give?, What would I say?|

If you could send myself a letter ten years ago what would I say? Early last week, Tim turned over a metal bin lid, threw on some wood and lit a fire.  Our eldest son had decided to shout for an hour before going to sleep, so when we finally got to sit in our garden with the [...]

Top 10 Disability Clangers

By |2017-06-15T10:12:23+00:00May 9th, 2014|Categories: mum of child with disability, Top 10|

Here's my Top 10 Disability Clanger or what NOT to say to the parent of a child with disabilities. They include some of the pitfalls to avoid and advice for making situations less awkward. It's a minefield and I'm as hopeless as the next person, frequently putting my size six's in my mouth. Few people are deliberately [...]