Yearly Archives: 2018

/2018

(Not) Easy like a Sunday morning

By |2018-10-16T09:36:50+00:00October 12th, 2018|Categories: cerebral palsy, disability, easy, family, weekend|

What is easy about a weekend? I often get that Monday feeling on a Friday afternoon. It marks the start of me juggling the expectations and responsibilities. The struggle to rest, relax, have family time and 24/7 care. The Commodores classic 1970’s hit song, Easy like a Sunday morning, was a song on a jazz [...]

Dear Professionals…

By |2018-10-16T09:38:00+00:00October 7th, 2018|Categories: Uncategorized|

Dear Professionals, I’m not sure where to start because there are so many of you. Maybe you’re one of the many therapists (OT, PT, SALT) who collude and agree when it’s best to meet and then ask I adhere to your agreed date and time. Please know, I’m grateful for your input, skills and knowledge. [...]

Children shouldn’t come first

By |2018-10-03T15:27:36+00:00October 3rd, 2018|Categories: exhaustion, family, Mother of child with special needs, parenting|

I’ve heard it said, that children come first. We say it in lots of different ways; ‘It's the kids that matter.’ ‘You need to do what’s best for the children.’ Although I am passionate about the rights of children and their well-being, in our family at least, children don't come first. I have come to see [...]

The truth will set you free?

By |2018-10-16T09:40:16+00:00September 19th, 2018|Categories: acceptance, The skies I'm under, Truth, Uncategorized|

The glare of the theatre lights warmed my skin yet my body shook. The cesarean section was about to start. Everyone was poised, ready to carry out their designated duties yet I felt inadequate and out of my depth. I’d been in this environment before but this was different. Suddenly I wasn’t a face amongst [...]

Learning to cope with the staring stranger

By |2018-07-30T07:28:20+00:00July 30th, 2018|Categories: cerebral palsy, communication, disability, emotions, expectations|

Stop looking at me! It’s the summer holidays. It has rained a whole of two days and siblings around the country are complaining about the most mundane things. Like, “MUM! He’s looking at funny. Tell him to stop." My eldest brother used to complain I breathed too loudly whilst he was watching the TV. He certainly [...]

I’m so not inspirational, but I know people who are.

By |2018-03-24T21:26:53+00:00March 23rd, 2018|Categories: Uncategorized|

In our family, we have sorry rules. Sounds up tight, I know, but wanted 'sorry' to be meaningful and helpful, not flippant and reactive. Sorry was being said too easily without thought and was quickly becoming meaningless. The sorry rules are simple and I stole them from Cuppacocoa parenting blog about A better way to say [...]

7 Ways to get the Best out of your Professional

By |2018-03-16T19:45:13+00:00March 13th, 2018|Categories: Uncategorized|

Getting the best out of your professional is the title of a workshop I developed for parents like me who have children with additional needs. Some people, particularly practitioners, may wince at the title. Yet families like mine are often referred to as clients, case-load or service-users. Seeing the table turned shines an interesting light [...]

“Never feed your son again.”

By |2018-10-16T09:40:31+00:00February 9th, 2018|Categories: Uncategorized|

   “Our recommendation is that you never feed your son orally again.” These words were spoken to me as I sat wedged along a corridor at Great Ormond Street Hospital. No box of tissues. No comfortable sofa. Less than ten words were used to inform me that my son would never eat another birthday cake, [...]

Can I really make a difference?

By |2018-06-07T08:32:45+00:00February 2nd, 2018|Categories: Uncategorized|

Some lovely people (probably my parents) have nominated me for the category of ‘Making a Difference’ at the BAPS blogging awards presented by Bringing us Together. It got me thinking, how do I want to make a difference? Firstly, the difference starts at home. There is no point in me speaking and writing to inform [...]