Empowerment: the fallacy of a system which doesn’t listen

By |2023-11-28T14:01:45+00:00November 28th, 2023|Categories: assessment, Carers, disability, family, Learning disability, Mother of child with special needs, mum of child with disability, parenting, parenting a child with disabilties, Parents as partners, special needs|

As a qualified nurse, wife of a GP and the parent of a young man with complex disabilities, I sometimes feel as though I’m being fed the line of empowerment whilst being thrust into a system which doesn’t listen. Sometimes I wonder if, as a parent carer, I am a lot like Cassandra.  Cassandra, a [...]

Dear Professionals …

By |2023-06-06T09:22:41+01:00June 6th, 2023|Categories: #bridgingthegap, Born at the Right Time Training, co-production, communication, Don't call me Mum, effective communication, Inspiring, mum of child with disability, parenting, parenting a child with disabilties, special needs, Thank you, Uncategorized|Tags: , , , , , , , , , |

I’m not sure where to start because there are so many of you who have the opportunity to deliver personalised care. Maybe you’re one of the many therapists (Occupational Therapist, Physiotherapist, Speech And Language Therapist to name but a few) who collude and agree when it’s best to meet and then ask that I adhere [...]

Children in Need … or Children we’re Failing?

By |2023-03-08T10:57:42+00:00November 8th, 2022|Categories: #bridgingthegap, Charity, community, family, mum of child with disability, parenting a child with disabilties, Uncategorized|Tags: |

November. It’s that time of year again when Pudsey is dusting off his eye patch and schools around the country are asking children to come in wearing spots (because we all have spotty clothes in our cupboards) to raise money for Children in Need. What could possibly be wrong with [...]

5 reasons why my son has a DNAR

By |2023-05-02T18:03:24+01:00March 19th, 2021|Categories: #bridgingthegap, acceptance, communication, disability, DNAR, effective communication, Learning disability, parenting a child with disabilties|

It is reported in the BBC news yesterday (18th March 2021) that over the past year the CQC has identified 508 “Do not attempt resuscitation” (DNAR) orders which were inappropriately put in place without discussion with the person or family involved. There is evidence to suggest this is happening more frequently for people who have learning [...]

Dear Professionals…

By |2021-01-29T15:12:10+00:00October 7th, 2018|Categories: Born at the Right Time Training, co-production, communication, effective communication, Inspiring, mum of child with disability, parenting, parenting a child with disabilties, special needs, Uncategorized|

I’m not sure where to start because there are so many of you. Maybe you’re one of the many therapists (OT, PT, SALT) who collude and agree when it’s best to meet and then ask I adhere to your agreed date and time. Please know, I’m grateful for your input, skills and knowledge. I know [...]

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