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Is it too much to ask, to not have to fight?

By |2021-03-11T14:33:39+00:00February 23rd, 2017|Categories: Changing places, disability, fighting, Mother of child with special needs, mum of child with disability, Uncategorized|

**WARNING IMAGINATION REQUIRED** Imagine me in a Miss World competition. Obviously to do this, you'd have to believe I've abandoned any feminist ideals, grown a foot in height, enhanced my breasts and shrunk my waist. But, bear with me... Should I ever be a contestant on Miss World and the MC asks me what would be my one wish, it probably wouldn't be 'World [...]

Living on the Edge: My life as a parent

By |2017-10-20T21:27:50+00:00February 8th, 2017|Categories: acceptance, cerebral palsy, complications, disability, exhaustion, family, living on the edge, Mother of child with special needs, mum of child with disability, Uncategorized|

Is it just me? Or does anyone else feel like they are desperately trying to keep their house in order whilst stopping themselves from falling over the edge? I’ve always enjoyed living life a little on the edge. I love travelling and feeling like the foreigner. I’ve even been known to eat something that is a day [...]

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5 little things that make a Big Difference

By |2021-01-29T17:11:32+00:00February 8th, 2017|Categories: cerebral palsy, Don't call me Mum, featured, mum of child with disability, parenting, Parents as partners, Uncategorized|

When I worked as a  nurse in A&E, I knew that even in the middle of emergency procedures, how I treated the patient and family would be remembered. As a parent standing over my fitting son while the doctors fought to stop an hour long seizure, this simple fact went from theory to reality. As a healthcare professional [...]

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My children don’t come first!

By |2017-09-30T08:47:45+00:00October 20th, 2016|Categories: Uncategorized|Tags: , , , , |

I’ve heard it said, that the children come first. It’s a statement expressed in many forms. ‘It's the kids that matter.’ ‘You need to do what’s best for the children.’ But guess what? Sometimes, they DON’T. I've long held the belief that children aren’t the most important people in a family. I haven't dared to write about [...]

Training to change the future…

By |2017-06-15T11:58:28+00:00October 18th, 2016|Categories: Uncategorized|

I wasn’t given any training to be a mum - I wish I had. Eleven years on, I can be both super human and super-useless in the same day. In truth, the super-human bit normally filters away by the time I get out of bed but in my dreams I nurture my children with ease and finesse. [...]

Hello autumn, goodbye summer

By |2017-06-15T11:57:36+00:00October 3rd, 2016|Categories: cerebral palsy, cherishing today, disability, expectations, mum of child with disability, summer, Uncategorized|

As much as I love the summer, I’m glad it is autumn. It's time to collect conkers and pick the last few blackberries. Although I will miss the brighter days and warm sun on my face, the summer is my toughest season.

A nine-year-old’s open letter…

By |2017-06-15T11:56:56+00:00July 7th, 2016|Categories: cerebral palsy, cherishing today, disability, family, sibling, special needs, special needs sibling, Uncategorized|

"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."

An open letter to the Local Council that said NO…

By |2021-03-11T14:47:02+00:00July 1st, 2016|Categories: cerebral palsy, cherishing today, disability, family, mum of child with disability, Uncategorized|

It is a common phenomenon for parents of children with complex needs to hear 'No' from professionals and councils. A universal experience is our need to fight for our children.

Selfies – everyday moment, forever memory

By |2017-06-15T11:54:46+00:00May 25th, 2016|Categories: book, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, selfies, special needs, The skies I'm under, Uncategorized|

There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.