I wasn’t given any training to be a mum - I wish I had. Eleven years on, I can be both super human and super-useless in the same day. In truth, the super-human bit normally filters away by the time I get out of bed but in my dreams I nurture my children with ease and finesse. [...]
As much as I love the summer, I’m glad it is autumn. It's time to collect conkers and pick the last few blackberries. Although I will miss the brighter days and warm sun on my face, the summer is my toughest season.
"Grown-ups write letters to the council all the time but nine-year-old boys don't," I assured him. "We all need to say what we think is right, no matter how old we are."
It is a common phenomenon for parents of children with complex needs to hear 'No' from professionals and councils. A universal experience is our need to fight for our children.
'Me before you' is being challenged by the disability community. Parents of disabled children have been called to take a stand. So, here I am speaking out about how 'Me before you' affected me.
There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.
Everyone's normal is different. Nearly 50,000 children and their family's, live with a life-shortening condition. There are many hidden stories, as people quietly live out their tough and precious 'normal'.
I know today is nearly over but it's the first day of Children's Hospice week so I wanted to say something. Being allowed to stay at a Children's Hospice, is one of those things no-one wants to be eligible for. There are lots of these 'clubs', small groups of people that deep down we don't want to be [...]
Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]
At the beginning of 2015, I wrote a blog about New Years and IEPs (Individual Education Plan), but it was never published, until now. 'We celebrated this New Years Eve with our family cooking and sitting around a fire in the garden. New Years Day is a mark in the sand. It is a point [...]