mum of child with disability

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12 Days of Christmas (parody for complex families )

By |2017-06-15T12:00:21+00:00December 9th, 2016|Categories: 12 days of Christmas, Advantages, Christmas, mum of child with disability, special needs, Thank you|

Shakin Stevens and Slade are unashamedly blasting out from music systems around the country. The usual suspects have decked their homes with enough lights to be seen from space.  'Miracle of 34th Street' and 'It's a wonderful life' are scheduled several times over the next couple of weeks. Simple Stuff works have made a goat looking 'Sian [...]

Hello autumn, goodbye summer

By |2017-06-15T11:57:36+00:00October 3rd, 2016|Categories: cerebral palsy, cherishing today, disability, expectations, mum of child with disability, summer, Uncategorized|

As much as I love the summer, I’m glad it is autumn. It's time to collect conkers and pick the last few blackberries. Although I will miss the brighter days and warm sun on my face, the summer is my toughest season.

An open letter to the Local Council that said NO…

By |2018-01-27T07:18:59+00:00July 1st, 2016|Categories: cerebral palsy, cherishing today, disability, family, mum of child with disability, Uncategorized|

It is a common phenomenon for parents of children with complex needs to hear 'No' from professionals and councils. A universal experience is our need to fight for our children.

Selfies – everyday moment, forever memory

By |2017-06-15T11:54:46+00:00May 25th, 2016|Categories: book, communication, disability, family, Mother of child with special needs, mum of child with disability, parenting, selfies, special needs, The skies I'm under, Uncategorized|

There is something I’ve discovered, no matter how hard I try, moments still only last a second. Over the last year I have tried really hard to soak up life but time still just flies by as moments effortlessly slip through my fingers, no matter how hard I grip or how deeply I breathe.

Top 6 Disability Hacks

By |2018-02-15T11:30:54+00:00May 6th, 2016|Categories: cerebral palsy, disability, featured, hack, mum of child with disability, special needs, Uncategorized, wheelchair|

Life changes when you become a mum, even more so when your son has a disability. With any baby, normal run of the mill activities become calculated missions of precision and specialist equipment. Leaving the house takes two hours of planning and a boot-load of accessories. Going on holiday requires upsizing your car and is suddenly [...]

Down Syndrome Test – measuring the value of life

By |2017-10-31T08:54:28+00:00January 18th, 2016|Categories: Advantages, disability, Down Syndrome, family, hope, Mother of child with special needs, mum of child with disability, priorities, Uncategorized, value, worth|

The debate about the ‘Down Syndrome Blood Test’ is raging. Unfortunately, I think a lot of it fails to question whether any blood test can accurately measure the value of a life.

Top 11 Advantages to Parenting a Disabled Child

By |2018-10-16T09:35:44+00:00January 8th, 2016|Categories: cerebral palsy, disability, featured, Mother of child with special needs, mum, mum of child with disability, parenting, special needs, The skies I'm under|

Parenting a disabled child gets a bad press, so here is my Top 11 advantages to parenting a disabled child but there are many more.

Going Out in My Underwear

By |2017-06-15T11:32:31+00:00December 15th, 2015|Categories: book, cerebral palsy, Mother of child with special needs, mum of child with disability, parenting, The skies I'm under|

Have you ever dreamt that you walk into work and everyone is staring at you? At first you smile at the on-looking faces, then you begin to wonder why you're getting so much attention. Suddenly, your heart races as you anxiously look down to discover you aren’t wearing any trousers. Everyone is staring because you've stepped outside in your underwear.

Birthday or Anniversary

By |2017-06-15T11:29:45+00:00October 12th, 2015|Categories: anniversary, birthday, cerebral palsy, disability, family, Mother of child with special needs, mum, mum of child with disability, parenting, special needs|

12th October 2005 was Sam's birth day and my defining moment. 10 years ago today I had one of the toughest days of my life. My world was turned upside down and I became a mum. Motherhood is a magnifying glass. It amplifies your emotions, your strengths, your weaknesses and your LOVE. When you watch your [...]